Blood Cancers & Disorders Support Group

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Comment

I am sorry that you are not doing well . I have myelofibtosis and still on...

https://connect.mayoclinic.org/comment/1251826/

Discussion: Myelofibrosis, Ojjaara and anemia

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2025

Comment

I’ve had the same reaction to PV - am on Jakafi 20 mg 2x/day. It gets...

https://connect.mayoclinic.org/comment/869644/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Comment

Hi @onthejoedock. Thought I’d take a moment to check in with you to see how your...

https://connect.mayoclinic.org/comment/1190947/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Dec 15, 2024

Comment

Thanks for reply. I, too, am on Jakafi and have been treated for condition for about...

https://connect.mayoclinic.org/comment/132600/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2017

Comment

I took HU for 7 years. Never realized the side effects that were associated with that...

https://connect.mayoclinic.org/comment/1312590/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: May 25, 2025

Comment

As noted in another post it may be gout. When I was on HU I was...

https://connect.mayoclinic.org/comment/1392821/

Discussion: Is foot/toe pain a symptom of increasing platelets in ET?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2025

Comment

I've been on Jakafi since December 2022 and I've not had any bad side effects. Initially...

https://connect.mayoclinic.org/comment/912758/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

Comment

Jakafi is not chemo medicine as such. It is treatment targeted for PV and myelofibrosis; it...

https://connect.mayoclinic.org/comment/889987/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Comment

It’s been two years now since I started being treated for a skin problem. I have...

https://connect.mayoclinic.org/comment/855281/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2023

Comment

I have been on Jakafi 15 ml for 3 years stop working had to be move...

https://connect.mayoclinic.org/comment/1466862/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2025