Blood Cancers & Disorders Support Group

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Comment

Blood test and 2 biopsies. Yes – JAK2 platelet count 893 – 75mg Aspirin and 500mg...

https://connect.mayoclinic.org/comment/887557/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2023

Comment

Hi jgjacksonmn1 If you like to read more about Polycythemia Vera (PV): Causes, Symptoms, Diagnosis, and...

https://connect.mayoclinic.org/comment/1519910/

Discussion: This is new, overwhelming. Wife is diagnosed with PV, we need support

Support Group: Blood Cancers & Disorders

Posted: Mar 4 11:35pm

Comment

@kjoauch Jak2 positive can be diagnosed from a single lab test. It’s very expensive and takes...

https://connect.mayoclinic.org/comment/1401652/

Discussion: Diagnosed with Polycythemia Vera in August. I was given Hdroxyurea

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2025

Comment

ET triple negative is where you do not have any of the 3 mutations of ET....

https://connect.mayoclinic.org/comment/1279571/

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Apr 11, 2025

Comment

Hello, have just read read posts about sleep apnea. I have had PV with JAK2 for...

https://connect.mayoclinic.org/comment/856718/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023

Comment

Please do not rely on Chinese Herbs ( no disrespect )Please find a specialist to determine...

https://connect.mayoclinic.org/comment/1228037/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2025

Comment

It sound like your doctors are on top of your health. That is a high Jak2...

https://connect.mayoclinic.org/comment/1156319/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2024

Comment

Maybe asked already, were you tested for the JAK2 mutation (or others)? This would typically be...

https://connect.mayoclinic.org/comment/1102017/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2024

Comment

I was diagnosed with PV two years ago. Absolutely no exposure to radiation. Haematologist says it’s...

https://connect.mayoclinic.org/comment/1100223/

Discussion: Contracting/developing polycythemia vera

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2024

Comment

I have no pain or anything else with Hydrea, 500 mg daily. My platelets were 800,000...

https://connect.mayoclinic.org/comment/854230/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 4, 2023