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1,214 total results
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Discussions (79)
Comments (1,135)
Comment
Hi, I have ET/JAK2 & Dr wants me to start Hydroxyurea 1 per day. I’m concerned...
https://connect.mayoclinic.org/comment/789840/
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Discussion:
MGUS with Polycythemia Vera (PV)
Support Group:
Blood Cancers & Disorders
Posted: Dec 28, 2022
Comment
Being fatigued is the hydroxy it is a chemo medication which helps your bone marrow to...
https://connect.mayoclinic.org/comment/974124/
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Discussion:
Essential Thrombocytosis: What amount of hydroxy do you take?
Support Group:
Blood Cancers & Disorders
Posted: Dec 2, 2023
Comment
Hi - I have been diagnosed with chronic eosinophilic leukemia and the test that diagnosed it...
https://connect.mayoclinic.org/comment/1062089/
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Discussion:
Others out there with CEL (Chronic Eosinophilic Leukemia)?
Support Group:
Blood Cancers & Disorders
Posted: May 4, 2024
Comment
I'm taking 1500mg of HU daily along and 325mg aspirin. I'm 74, have ET Jak2. My...
https://connect.mayoclinic.org/comment/861686/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: May 18, 2023
Comment
Hello and I am new to this. My brother just got his JAK2 V617F back and...
https://connect.mayoclinic.org/comment/834314/
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Discussion:
Myelofibrosis w/ JAK2 mutation
Support Group:
Blood Cancers & Disorders
Posted: Mar 30, 2023
Comment
From what I remember, low-impact regular exercise helps lower cortisol levels. I’ve got a somewhat stressful...
https://connect.mayoclinic.org/comment/870089/
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Discussion:
Essential Thrombocythemia (ET): foods, diet, nutrition?
Support Group:
Blood Cancers & Disorders
Posted: May 31, 2023
Comment
After two weeks on one pill of HU my eGFR went from 82 to 52. Has...
https://connect.mayoclinic.org/comment/826035/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Mar 14, 2023
Comment
Hello , I have been treated for PV/ JAK2 for four years . I was on...
https://connect.mayoclinic.org/comment/773685/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Nov 15, 2022
Comment
Thank you for this information. I will pass this along to my son. I recently found...
https://connect.mayoclinic.org/comment/252005/
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Discussion:
High platelet count: What does this mean?
Support Group:
Blood Cancers & Disorders
Posted: Mar 1, 2019
Comment
I don't think anyone is telling people not to travel, just to take their meds and,...
https://connect.mayoclinic.org/comment/1089550/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Jun 19, 2024
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