Blood Cancers & Disorders Support Group

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Comment

@maine here's the procedure code that was on my EOB when I had the Jak 2...

https://connect.mayoclinic.org/comment/1530266/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 18 9:21pm

Comment

With me they found high platelets and had me see a hematologist who tested for jak2...

https://connect.mayoclinic.org/comment/974148/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2023

Comment

I have hereditary hemochromatosis as well as ET Jak2. The type of hemochromatosis was never mentioned....

https://connect.mayoclinic.org/comment/1591099/

Discussion: Does anyone else have ferroportin disease, AKA hemochromatosis Type 4?

Support Group: Blood Cancers & Disorders

Posted: Jun 5 7:49am

Comment

I have PV and Jak2+ and suffer balance issues, I think it’s just a thing with...

https://connect.mayoclinic.org/comment/1604962/

Discussion: Has anyone here with PV /w jak2 suffered loss of balance?

Support Group: Blood Cancers & Disorders

Posted: Jun 24 5:45am

Comment

Wow! You must have a strong stomach to be able to take 325mg of aspirin. I...

https://connect.mayoclinic.org/comment/975891/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2023

Comment

@nohrt4me Thank you for your reply. I do have the JAK2 gene mutation and both my...

https://connect.mayoclinic.org/comment/1404334/

Discussion: My wife tested positive for jak2 and has high platelet count

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2025

Comment

Hello, does anyone know if DDR (DNA Damage Repair) can take place on the JAK2 V617F...

https://connect.mayoclinic.org/comment/1011176/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2024

Comment

Hello, have just read read posts about sleep apnea. I have had PV with JAK2 for...

https://connect.mayoclinic.org/comment/856718/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023

Comment

Welcome to our group. I was very interested to read that you have both ET and...

https://connect.mayoclinic.org/comment/786724/

Discussion: Does anyone else have more than one myeloproliferative disorder?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2022

Comment

@dreamspinner3 I think mastocytosis is caused by the a KIT mutation. It's fairly easy to differentiate...

https://connect.mayoclinic.org/comment/1404207/

Discussion: My wife tested positive for jak2 and has high platelet count

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2025

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