Blood Cancers & Disorders Support Group

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Comment

@sarahgault I was diagnosed exactly a year ago...platelets 490. I'm 76 now, have quarterly blood work;...

https://connect.mayoclinic.org/comment/1554522/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: 9 hours ago

Comment

Hello, does anyone know if DDR (DNA Damage Repair) can take place on the JAK2 V617F...

https://connect.mayoclinic.org/comment/1011176/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2024

Comment

Hi jgjacksonmn1 If you like to read more about Polycythemia Vera (PV): Causes, Symptoms, Diagnosis, and...

https://connect.mayoclinic.org/comment/1519910/

Discussion: This is new, overwhelming. Wife is diagnosed with PV, we need support

Support Group: Blood Cancers & Disorders

Posted: Mar 4 11:35pm

Comment

@dreamspinner3 I think mastocytosis is caused by the a KIT mutation. It's fairly easy to differentiate...

https://connect.mayoclinic.org/comment/1404207/

Discussion: My wife tested positive for jak2 and has high platelet count

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2025

Comment

I am currently taking 500 mg Hydroxyurea on Monday/Wednesday/Friday. Headaches are less. I have ET JAK2....

https://connect.mayoclinic.org/comment/940964/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

Comment

I was diagnosed around 2 1/2 years ago and agree that blood results along with JAK2...

https://connect.mayoclinic.org/comment/937883/

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 28, 2023

Comment

Blood test and 2 biopsies. Yes – JAK2 platelet count 893 – 75mg Aspirin and 500mg...

https://connect.mayoclinic.org/comment/887557/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2023

Comment

ET triple negative is where you do not have any of the 3 mutations of ET....

https://connect.mayoclinic.org/comment/1279571/

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Apr 11, 2025

Comment

@kjoauch Jak2 positive can be diagnosed from a single lab test. It’s very expensive and takes...

https://connect.mayoclinic.org/comment/1401652/

Discussion: Diagnosed with Polycythemia Vera in August. I was given Hdroxyurea

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2025

Comment

Hello, have just read read posts about sleep apnea. I have had PV with JAK2 for...

https://connect.mayoclinic.org/comment/856718/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023