Blood Cancers & Disorders Support Group

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Comment

My platelet count was 1,225,000 when I was first diagnosed in Venezuela., S.A. My hematologist there...

https://connect.mayoclinic.org/comment/203950/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2019

Comment

I have MDS/MPN-RS-T which is an extremely rare overlap disease. I have multiple gene mutations on...

https://connect.mayoclinic.org/comment/855780/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2023

Comment

Hello,how are you all ?❤️ Well ,my biopsy results:no evidence of granuloma or abnormal lymphoid cell...

https://connect.mayoclinic.org/comment/1049809/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Apr 12 10:33pm

Comment

My gastro doctor was looking to see why I was having abdominal pain and referred me...

https://connect.mayoclinic.org/comment/871268/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2023

Comment

I was diagnosed in 2001 with PV/ jak2 mutated with blood withdrawals until 2012 Myelofibrosis diagnosed...

https://connect.mayoclinic.org/comment/794654/

Discussion: Any suggestions for chronic shortness of breath with PV?

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2023

Comment

Hydroxyurea caused unusual tiredness and weakness. All I wanted to do was sleep or do nothing...

https://connect.mayoclinic.org/comment/1016782/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 16 10:08am

Comment

@tkp22, I can understand you're worried. It sounds like your health care team is being thorough....

https://connect.mayoclinic.org/comment/719785/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2022

Comment

Hi @pamdg, You’re wondering if Jakafi can cause irregular heartbeat. I’m looking at the Drugs.com website...

https://connect.mayoclinic.org/comment/699161/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2022

Comment

Hospital missed Polycythemia Vera Nov 2020 but; Mother/ Wife age 50 Hospitalized for cellulitis 2x (same...

https://connect.mayoclinic.org/comment/795964/

Discussion: Chronic Myeloid Leukemia (CML)

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2023

Comment

Hello, I took serrapeptase for a while. I really had no idea if it was working...

https://connect.mayoclinic.org/comment/132666/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2020