Blood Cancers & Disorders Support Group

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Comment

Welcome to Connect, @jtcat7. Looks like you have a full deck of mutations in your hand....

https://connect.mayoclinic.org/comment/1367613/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2025

Comment

Hi @dawnmarieyoung I just wanted to follow-up with you to see if you caught my reply...

https://connect.mayoclinic.org/comment/1368963/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 12, 2025

Comment

@toste I am so sorry to hear about your husband's diagnosis. Yes, many of us with...

https://connect.mayoclinic.org/comment/1493896/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 30 6:13am

Comment

Welcome to Mayo Connect, @chrisatwell. We all occasionally need a lifeline. And sometimes all it takes...

https://connect.mayoclinic.org/comment/1265486/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2025

Comment

I was diagnosed by Mayo with myelofibrosis several years ago. Since then, various clinics have repeatedly...

https://connect.mayoclinic.org/comment/699543/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2022

Comment

Hi again @davi0937, You have company as I was diagnosed with that also, but in February...

https://connect.mayoclinic.org/comment/1349931/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2025

Comment

I'm just starting on Jakafi and am anxious about the side effects and the necessity of...

https://connect.mayoclinic.org/comment/1381817/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2025

Comment

You will find on this site lot’s encouraging and people with words of wisdom on your...

https://connect.mayoclinic.org/comment/1312965/

Discussion: Primary Myelofibrosis: What is life going to be like now?

Support Group: Blood Cancers & Disorders

Posted: May 26, 2025

Comment

Thank you so much for your positive comments on Ojjaara. For two years I have not...

https://connect.mayoclinic.org/comment/1167877/

Discussion: Primary Myelofibrosis with JAK2: Anyone have Ojjaara (momelotinib)?

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2024

Comment

Hi @mahmoudbakry. Sometimes diagnosing a blood condition can be like unraveling a complicated mystery with an...

https://connect.mayoclinic.org/comment/1044404/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2024