Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

905 total results

Comment

I’m 71 & was diagnosed with MDS in March. I wasn’t given the option of wait...

https://connect.mayoclinic.org/comment/1369358/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Aug 12 6:04pm

Comment

hi again. Both doctors are Hematologist/Oncologist. Just two different hospitals. To recap: initial routine blood test:...

https://connect.mayoclinic.org/comment/1382630/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 30 11:06am

Comment

Hi @callahan I provided a link for you in my previous reply for one of many...

https://connect.mayoclinic.org/comment/1219949/

Discussion: Waldenstrom's: Should I take the new medication (rituximab)?

Support Group: Blood Cancers & Disorders

Posted: Jan 23 4:43pm

Comment

Hi @desertjulie. There are other drugs used to treat MDS, but your husband's physician probably recommended...

https://connect.mayoclinic.org/comment/88394/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2017

Comment

I was originally diagnosed with ET based on a positive JAK2 bloid test. I asked the...

https://connect.mayoclinic.org/comment/194320/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2019

Comment

I’m so sorry to hear about your friend and the seriousness of his late stage MDS....

https://connect.mayoclinic.org/comment/1120623/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2024

Comment

What is the name of your doctor at university of Miami? We are originally from Miami...

https://connect.mayoclinic.org/comment/1341301/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jul 5 12:16am

Comment

Yes have results it’s MDS now lookin into treatments they feel I need at this juncture...

https://connect.mayoclinic.org/comment/819391/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2023

Comment

So I will be on Inqovi either injectable or pill just like to hear how this...

https://connect.mayoclinic.org/comment/821492/

Discussion: How can I raise my platelet count? (With food)

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

Comment

I have discussed this with my hematologist/oncologist. The problem is that I'm concerned about his comment...

https://connect.mayoclinic.org/comment/622086/

Discussion: Use of Neupogen (or similar) prior to minor surgery

Support Group: Blood Cancers & Disorders

Posted: Aug 1, 2021