Blood Cancers & Disorders Support Group

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Comment

I also was diagnosed with PCV just this May. I had the horrible itching 2 years...

https://connect.mayoclinic.org/comment/749773/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2022

Comment

I was diagnosed 3 years ago with PV and positive for Jak 2. I take 2...

https://connect.mayoclinic.org/comment/869702/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Comment

Hi I have suffered with itching now for a number of years caused by my CLL....

https://connect.mayoclinic.org/comment/906166/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2023

Comment

Thank you so much for your kind reply! I’ve been on a med similar to Ayvakit,...

https://connect.mayoclinic.org/comment/1197478/

Discussion: Are the symptoms in my head? Polycythemia Vera + Mastocytosis (age-23)

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2024

Comment

Gina: Severe pain under your left rib cage sounds like potential spleen involvement and itching could...

https://connect.mayoclinic.org/comment/1085077/

Discussion: High Eosinophils with pain in left side under ribs and very itchy

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2024

Comment

I’m so happy for you. I’m 4 years in, 74 hrs old and seem to keep...

https://connect.mayoclinic.org/comment/895607/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

Comment

Is that your daily dosage? I was wondering how often you need phlebotomies? I’m taking 500mg...

https://connect.mayoclinic.org/comment/833870/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2023

Comment

Thanks, Justin. As I understand, greater in number, and interfering with life more than many others....

https://connect.mayoclinic.org/comment/195549/

Discussion: Darzalex Treatment

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2018

Comment

Diagnosed with ITP 5 months ago, age 80, was physically active prior to finding platelet count...

https://connect.mayoclinic.org/comment/908223/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2023

Comment

I am in the process of determining if I have Chronic Eosinophilic Leukemia. My eosinophil count...

https://connect.mayoclinic.org/comment/882023/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2023