Blood Cancers & Disorders Support Group

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Comment

I was really surprised to find out that my primary doctor, dermatologist , ENT, eye doctor...

https://connect.mayoclinic.org/comment/1086360/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024

Comment

Agree with the itching...this article made me chuckle because I asked my kid to get me...

https://connect.mayoclinic.org/comment/1315205/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: May 28 6:10pm

Comment

Hi I am 75 also and diagnosed maybe in 2019. Anyhow I have only done baby...

https://connect.mayoclinic.org/comment/1368778/

Discussion: How bad is a diagnosis of Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Aug 12 3:46am

Comment

Thank you for your response. I had to take Hydrea for 18 months before I was...

https://connect.mayoclinic.org/comment/821980/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

Comment

I too experience chronic itching, primarily on my back and in the evening. I understand that...

https://connect.mayoclinic.org/comment/819136/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2023

Comment

Hi @littlebluebird I’m so sorry your mom is having the nasty itchiness associated with MDS. As...

https://connect.mayoclinic.org/comment/1202303/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Jan 2 9:40am

Comment

Thank you Lori. I will do my blood work next week to see if the white...

https://connect.mayoclinic.org/comment/1330041/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 18 3:27pm

Comment

I have PCV with Jak 2 . I take 2 baby aspirin a day and phlebotomy...

https://connect.mayoclinic.org/comment/919662/

Discussion: PV with high blood pressure and now edema??

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2023

Comment

Fatigue is a major complaint. I nap almost every day. Taking 1000mg of hydroxyurea and baby...

https://connect.mayoclinic.org/comment/869738/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Comment

I get Procrit shots for my myelodysplastic syndrome which help a lot, BUT I'm also having...

https://connect.mayoclinic.org/comment/240723/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2019