Blood Cancers & Disorders Support Group

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Comment

Have you had a bone marrow biopsy to be sure that what you’re dealing with is...

https://connect.mayoclinic.org/comment/1215424/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 18 8:07am

Comment

jseeker. Have you message The Moffitt center or her current dr for help with this symptom?...

https://connect.mayoclinic.org/comment/1210759/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 13 3:37pm

Comment

Glad that you share faith in Jesus Christ. Two things I observe: 1. It was a...

https://connect.mayoclinic.org/comment/1139944/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2024

Comment

Thanks Coleen for your input. My husband's disease is not considered leukemia but a disease of...

https://connect.mayoclinic.org/comment/101842/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 28, 2016

Comment

Hi withhope, I am very sorry you have had such a bad experience with all that....

https://connect.mayoclinic.org/comment/1305421/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: May 16 11:08am

Comment

I have been taking Jakafi for post essential thrombocytosis (PET) Myelofibrosis since Nov 2020 and had...

https://connect.mayoclinic.org/comment/1091493/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

Comment

I am also inerested in what medication you are currently taking. I was on Anagrelide for...

https://connect.mayoclinic.org/comment/1203927/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 4 4:39pm

Comment

Hi @sonja239. I understand your duress with having received news that you have two myeloproliferative blood...

https://connect.mayoclinic.org/comment/1097321/

Discussion: Why is a new bone marrow biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2024

Comment

Hi @marygantt, I totally relate to feeling confused by doctor’s recommendations! I was diagnosed with ET...

https://connect.mayoclinic.org/comment/1325811/

Discussion: I am looking for advice on lab work and how to address my Dr about it

Support Group: Blood Cancers & Disorders

Posted: Jun 12 3:34pm

Comment

Yes unfortunately that is true. For years after my mom passed from Myelofibrosis I donate to...

https://connect.mayoclinic.org/comment/982569/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2023