Blood Cancers & Disorders Support Group

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Comment

Honestly, I really do not think my O/H knows if I have ET or Myelofibrosis. I...

https://connect.mayoclinic.org/comment/1281668/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2025

Comment

I have had high triglycerides for forty years a low HDL. In my case, it had...

https://connect.mayoclinic.org/comment/1226850/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2025

Comment

Hi @wellness3070. I'd also like to introduce you to other members who have myelofibrosis or are...

https://connect.mayoclinic.org/comment/132597/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2017

Comment

I too have Myelofibrosis I did a bone marrow biopsy prior to starting Jakafi. They did...

https://connect.mayoclinic.org/comment/1099094/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

Comment

So I turn 70 next year. Transplant has never been mentioned, I hope there is some...

https://connect.mayoclinic.org/comment/1351764/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2025

Comment

Hi @mumblipeg , Thanks for sharing your store and great to hear you just have pre-myelofibrosis...

https://connect.mayoclinic.org/comment/1349772/

Discussion: Question about how you each received your diagnosis of MPN

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2025

Comment

Hello Connection Community - for those that have Myelofibrosis - my particular type is primarily anemia-...

https://connect.mayoclinic.org/comment/1348019/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2025

Comment

Hydroxyurea tends to lower blood cells, so it's unlikely to help with low platelets. JAK inhibitors...

https://connect.mayoclinic.org/comment/1249599/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2025

Comment

I was diagnosed with myelofibrosis in 2014.comfirmed with a Jak2 DNA deviation test . Up until...

https://connect.mayoclinic.org/comment/1527906/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 15 11:35pm

Comment

Hi dunewalker, Since I really do not know what I actually have, a have not taken...

https://connect.mayoclinic.org/comment/1268772/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2025