Blood Cancers & Disorders Support Group

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Comment

I was diagnosed 3 years ago with secondary (non cancerous) PV. I do not have the...

https://connect.mayoclinic.org/comment/870096/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Comment

I've been taking 600mgs of hydroxyurea (Droxia formulation) daily for myelofibrosis for the past 6 yrs....

https://connect.mayoclinic.org/comment/1080798/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 4 1:52pm

Comment

Hi Steve, Becky has the JAK2 mutation which, from my understanding, makes primary ET more likely,...

https://connect.mayoclinic.org/comment/1154236/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Oct 8 10:02pm

Comment

Hi Tessa My mum was diagnosed with ET when she went to routinely donate blood. She...

https://connect.mayoclinic.org/comment/1069140/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: May 16 3:26pm

Comment

Unfortunately, I had bad side effects—extreme fatigue, shortness of breath in situations where it never happened...

https://connect.mayoclinic.org/comment/861813/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: May 18, 2023

Comment

Lori, What a blessing !!! Thank you !!! Hospital missed PV Nov 2020 but; Hospitalized same...

https://connect.mayoclinic.org/comment/795959/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2023

Comment

I recently learned pterostilbene from blueberries offers greater quercetin absorption than resveratrol. Going in that direction...

https://connect.mayoclinic.org/comment/132654/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2020

Comment

I was originally miss diagnosed with polycythemia Vera. Because I was borderline anemic and I worked...

https://connect.mayoclinic.org/comment/1044688/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 3 10:22am

Comment

Bone marrow felt like a quick bee sting for me. Over in 10 minutes. I would...

https://connect.mayoclinic.org/comment/787277/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2022

Comment

I realize I’m replying to myself but I hope everyone can see this. I’m starting to...

https://connect.mayoclinic.org/comment/57943/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2020