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Discussions (106)
Comments (1,895)
Comment
I had it done two weeks ago, following the suggestion of folks here to get a...
https://connect.mayoclinic.org/comment/1199440/
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Discussion:
What was your experience with bone marrow biopsy?
Support Group:
Blood Cancers & Disorders
Posted: Dec 29, 2024
Comment
I had to look up NXG, what I came up with was "Necrobiotic xanthogranuloma (NXG) is...
https://connect.mayoclinic.org/comment/991158/
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Discussion:
Does anyone else have MGUS?
Support Group:
Blood Cancers & Disorders
Posted: Jan 4, 2024
Comment
mgrspixi25 I'm so sorry to hear about your struggles there, including the wait times. I'm recently...
https://connect.mayoclinic.org/comment/931591/
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Discussion:
Anyone else have Symptomatic MGUS?
Support Group:
Blood Cancers & Disorders
Posted: Sep 17, 2023
Comment
Thank you Lori and welcome new folks. Andrea, I very much agree with Lori that Amazon...
https://connect.mayoclinic.org/comment/886232/
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Discussion:
Does anyone else have MGUS?
Support Group:
Blood Cancers & Disorders
Posted: Jun 27, 2023
Comment
This may make you feel a little better. I was diagnosed with ET in 2011. Platelets...
https://connect.mayoclinic.org/comment/848013/
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Discussion:
Jak 2 Positive with Elevated Platelets: What symptoms do you have?
Support Group:
Blood Cancers & Disorders
Posted: Apr 23, 2023
Comment
MGUS - from what I have learned - definitely isn’t well understood (the key is in...
https://connect.mayoclinic.org/comment/958748/
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Discussion:
Does anyone have any info on MGUS treatment or risk of progression?
Support Group:
Blood Cancers & Disorders
Posted: Nov 4, 2023
Comment
Welcome to the blood cancers and disorders discussion @kaiti When meeting with your oncologist regarding MGUS,...
https://connect.mayoclinic.org/comment/1261196/
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Discussion:
Does anyone else have MGUS?
Support Group:
Blood Cancers & Disorders
Posted: Mar 18 12:50pm
Comment
@kayabbott @allstaedt57 @pmm Hi Everyone, Thank you so much for your replies. I have an amazing...
https://connect.mayoclinic.org/comment/1010368/
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Discussion:
MGUS Symptoms: What symptoms did you experience?
Support Group:
Blood Cancers & Disorders
Posted: Feb 5, 2024
Comment
Generally, the doctor will order blood tests every few months (60 mo. interval for me). I...
https://connect.mayoclinic.org/comment/1123341/
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Discussion:
MGUS diet: Any tips on food to enjoy or prevent progression?
Support Group:
Blood Cancers & Disorders
Posted: Aug 14, 2024
Comment
@kakc19 I am not medically trained, but I suspect that you will have more screening before...
https://connect.mayoclinic.org/comment/1074238/
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Discussion:
Is it normal for free light chains to fluctuate?
Support Group:
Blood Cancers & Disorders
Posted: May 25, 2024
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