Blood Cancers & Disorders Support Group

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Comment

He is taking the TIVSOBO daily until it doesn't work. Then the plan is to switch...

https://connect.mayoclinic.org/comment/934090/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2023

Comment

Hi @bettersleep68 Good to hear from you! It looks like slowly but surely your blast count...

https://connect.mayoclinic.org/comment/1331490/

Discussion: Looking for alternative for AML treatment with kidney failure.

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2025

Comment

Diagnosed in may 2023 with MDS/AML blasts of 26% forced me into hospital for first treatment...

https://connect.mayoclinic.org/comment/1206679/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2025

Comment

Welcome to Connect, @grat1963. Oh my gosh, it’s so sad to hear about your sister and...

https://connect.mayoclinic.org/comment/1342943/

Discussion: MDS now progressing to AML and need to decide if time to start Vidaza

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2025

Comment

Hi @doitbob How old are all these patients? Well, in this particular discussion most of the...

https://connect.mayoclinic.org/comment/1518676/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Mar 3 1:02pm

Comment

My husband found out in January he has myelofibrosis, it was a shock to us. He...

https://connect.mayoclinic.org/comment/1412275/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 9, 2025

Comment

Hi Steve My case is similar to yours. I was treated with Hydroxyurea for7 yrs for...

https://connect.mayoclinic.org/comment/913626/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2023

Comment

This is so encouraging. I am On venetoclax snd vidaza. I just finished my first 5...

https://connect.mayoclinic.org/comment/1408194/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2025

Comment

Hi @desertjulie. There are other drugs used to treat MDS, but your husband's physician probably recommended...

https://connect.mayoclinic.org/comment/88394/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2017

Comment

Hi Elizabeth! That’s really great news about your husband’s response to the Vidaza. It has a...

https://connect.mayoclinic.org/comment/1273119/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2025