Blood Cancers & Disorders Support Group

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Comment

I experienced similar hgb factors rqr blood and platelets transfusions. It was a journey to find...

https://connect.mayoclinic.org/comment/1246466/

Discussion: Low hemoglobin and enlarged liver and spleen

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2025

Comment

I am 82 y.o. and just finished week 10 of Vidaza therapy. Neutrophils fluctuating around 1.2...

https://connect.mayoclinic.org/comment/1399532/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2025

Comment

In my Mom’s case, her doctor said the median of Vidaza treatments was an additional 5...

https://connect.mayoclinic.org/comment/1382566/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Aug 30, 2025

Comment

Lori, our appt yesterday was not very good. The Doctor said he could see some leukemia...

https://connect.mayoclinic.org/comment/1252047/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2025

Comment

Welcome to Connect, @grat1963. Oh my gosh, it’s so sad to hear about your sister and...

https://connect.mayoclinic.org/comment/1342943/

Discussion: MDS now progressing to AML and need to decide if time to start Vidaza

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2025

Comment

Thank you Justin , yes I have asked my Doctor and he says I,m doing fine...

https://connect.mayoclinic.org/comment/251918/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2019

Comment

He is taking the TIVSOBO daily until it doesn't work. Then the plan is to switch...

https://connect.mayoclinic.org/comment/934090/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2023

Comment

Hi @bettersleep68 Good to hear from you! It looks like slowly but surely your blast count...

https://connect.mayoclinic.org/comment/1331490/

Discussion: Looking for alternative for AML treatment with kidney failure.

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2025

Comment

Diagnosed in may 2023 with MDS/AML blasts of 26% forced me into hospital for first treatment...

https://connect.mayoclinic.org/comment/1206679/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2025

Comment

Hi Steve My case is similar to yours. I was treated with Hydroxyurea for7 yrs for...

https://connect.mayoclinic.org/comment/913626/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2023

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