Blood Cancers & Disorders Support Group

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Comment

Hi circawdm, I would agree with what you said if one has ET. My O/H told...

https://connect.mayoclinic.org/comment/1316170/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 30 12:50am

Comment

@pesterthief, I found this information: "Primary idiopathic myelofibrosis is a rare myeloproliferative condition which can present...

https://connect.mayoclinic.org/comment/1168109/

Discussion: Any suggestions on what time of day is best for taking Hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2024

Comment

This is pretty normal - I had pain in that area for about a month -...

https://connect.mayoclinic.org/comment/889844/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Comment

Hi davi0937, Like you, I was diagnosed with primary myelofibrosis but that was one month after...

https://connect.mayoclinic.org/comment/1338448/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 30 10:53am

Comment

Maybe your doctor should look on CDC, NIH and World Health Org..... In hematology, essential thrombocythemia...

https://connect.mayoclinic.org/comment/1280701/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 13 9:43am

Comment

Hello everybody,so this picture is my bone marrow biopsy results,I went to the doc and he...

https://connect.mayoclinic.org/comment/1039033/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2024

Comment

HI The only side affect I have had is tiredness, I avoid sitting in the sun...

https://connect.mayoclinic.org/comment/940309/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2023

Comment

Good evening I was diagnosed with primary myelofibrosis about a month ago. The bone marrow biopsy...

https://connect.mayoclinic.org/comment/1338019/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 29 5:32pm

Comment

derikburger @derikburg My PV caused Myelofibrosis, I was diagnosed Dec. 30, 2022 . Jakafi, Hydroxyurea ,...

https://connect.mayoclinic.org/comment/817148/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2023

Comment

Greetings, I don't like the idea of looking towards an 'end stage'. That sounds like disaster....

https://connect.mayoclinic.org/comment/1049371/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2024