Blood Cancers & Disorders Support Group

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Comment

My husband was diagnosed with primary myelofibrosis 1 month ago. The doctor hasn’t stated him on...

https://connect.mayoclinic.org/comment/1249038/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Mar 2 9:42pm

Comment

To determine if I still had polycythemia vera or myelofibrosis a bone marrow biopsy was done...

https://connect.mayoclinic.org/comment/876362/

Discussion: Delayed pain after bone marrow biopsy??

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2023

Comment

Recently diagnosed with essential thrombocythemia and primary myelofibrosis with MPL mutation. Blood transfusions and iron infusions...

https://connect.mayoclinic.org/comment/764111/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2022

Comment

Hi, I,too, took Hydroxyurea for years to combat high platelet count. About three years I was...

https://connect.mayoclinic.org/comment/50507/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2017

Comment

Wow. I'm terrible at this posting stuff I guess. I just saw that you had asked...

https://connect.mayoclinic.org/comment/1039752/

Discussion: High platelets, Jak2, ET, and pre-fib new diagnosis

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2024

Comment

This is the first discussion I have seen concerning myelofibrosis. I was diagnosed with Primary myelofibrosis...

https://connect.mayoclinic.org/comment/1209703/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 12 9:10am

Comment

Hi Steve, I couldn't find any evidence-based mentions of serrapeptase being used to help treat myelofibrosis....

https://connect.mayoclinic.org/comment/132609/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2017

Comment

I found it online. It's an open access article in Volume 67 (January 2024) of the...

https://connect.mayoclinic.org/comment/1226430/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 31 4:16pm

Comment

I was diagnosed with myelofibrosis, mds & mpn in March 2025. Im waiting for a donor...

https://connect.mayoclinic.org/comment/1368766/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Aug 12 2:42am

Comment

I couldn't get my Anagralide through hospital was going to cost the earth to get through...

https://connect.mayoclinic.org/comment/1202803/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 3 2:25am