Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

443 total results

Comment

I have been on Jakafi for several years now. I don't seem to have any side...

https://connect.mayoclinic.org/comment/1313821/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: May 27, 2025

Comment

Besremi may not be a normal ET med, 2 docs (both mpn specialists at research institutions)...

https://connect.mayoclinic.org/comment/1453474/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2025

Comment

Amanda-I am 74 & was diagnosed with myelofibrosis in 2016. Just interested in overall discussions of...

https://connect.mayoclinic.org/comment/674388/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2022

Comment

@samlupowitz I saw on your profile that you joined this group 3 years ago, so I...

https://connect.mayoclinic.org/comment/1503414/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 11 5:04pm

Comment

Interesting, since that's exactly what happened after I started Jakafi. My platelets doubled in one week...

https://connect.mayoclinic.org/comment/1123781/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2024

Comment

Glad things are going well for you. My Dr put me on Jakafi and I no...

https://connect.mayoclinic.org/comment/1368908/

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2025

Comment

I have been on Jakafi over 4 years, it was the only thing that would slow...

https://connect.mayoclinic.org/comment/890182/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Comment

I can relate to blindsided, I was diagnose with Primary myleofibrousis (anemic) in July 2023. I...

https://connect.mayoclinic.org/comment/1275379/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 6, 2025

Comment

Hello , I have been treated for PV/ JAK2 for four years . I was on...

https://connect.mayoclinic.org/comment/773685/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2022

Comment

@deb913 I’m 76 and have been on Jakafi for 1 year with no side effects. It...

https://connect.mayoclinic.org/comment/1443773/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2025