Blood Cancers & Disorders Support Group

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Comment

Hello, have just read read posts about sleep apnea. I have had PV with JAK2 for...

https://connect.mayoclinic.org/comment/856718/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023

Comment

I have no pain or anything else with Hydrea, 500 mg daily. My platelets were 800,000...

https://connect.mayoclinic.org/comment/854230/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 4, 2023

Comment

Please do not rely on Chinese Herbs ( no disrespect )Please find a specialist to determine...

https://connect.mayoclinic.org/comment/1228037/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 2 7:16pm

Comment

It sound like your doctors are on top of your health. That is a high Jak2...

https://connect.mayoclinic.org/comment/1156319/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2024

Comment

Maybe asked already, were you tested for the JAK2 mutation (or others)? This would typically be...

https://connect.mayoclinic.org/comment/1102017/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2024

Comment

I was diagnosed with PV two years ago. Absolutely no exposure to radiation. Haematologist says it’s...

https://connect.mayoclinic.org/comment/1100223/

Discussion: Contracting/developing polycythemia vera

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2024

Comment

I’ve just progressed from CML to AML and will be starting same treatment next week. I’d...

https://connect.mayoclinic.org/comment/994063/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2024

Comment

I found MPN Voice on healthunlocked.com. I was diagnosed with ET JAK2 in June 2022 so...

https://connect.mayoclinic.org/comment/770040/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2022

Comment

with pv NO when they take your blood it cannot be donated. I asked the oncologist...

https://connect.mayoclinic.org/comment/737001/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2022

Comment

Hi Steve My case is similar to yours. I was treated with Hydroxyurea for7 yrs for...

https://connect.mayoclinic.org/comment/913626/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2023