Blood Cancers & Disorders Support Group

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Comment

Just recently diagnosed myself, at 67, and still wrapping my brain around this. Also new to...

https://connect.mayoclinic.org/comment/1260457/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2025

Comment

I have essential thrombocythemia (ET), too many platelets. All other counts were normal as of January,...

https://connect.mayoclinic.org/comment/826965/

Discussion: Essential Thrombocytosis - what's your experience with Jakifi?

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2023

Comment

Hi. I asked my hematologist/oncologist which stage I'm in for each cancer and the number of...

https://connect.mayoclinic.org/comment/284528/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2019

Comment

You might be interested in the MPN Research Foundation site. It notes that women are 1.5...

https://connect.mayoclinic.org/comment/1047757/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2024

Comment

I was diagnosed with essential thrombocythemia in January, and have been taking hydroxyurea since then. Between...

https://connect.mayoclinic.org/comment/729701/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2022

Comment

Good morning, @sudutoo. I hope you have your reading glasses on! You have a lot of...

https://connect.mayoclinic.org/comment/1050553/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2024

Comment

Thanks for your post. I am now 75 and found Essential Thrombocythemia as my first chronic...

https://connect.mayoclinic.org/comment/776264/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2022

Comment

Basically, all of your symptoms of anemia and the ET may related. You’re not getting the...

https://connect.mayoclinic.org/comment/808454/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

Comment

Hello @esperanzam, welcome to Connect. You may noticed I moved your discussion and combined it with...

https://connect.mayoclinic.org/comment/203946/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2019

Comment

Welcome to Connect, @platlite7. This is a bit of a conundrum for you with the conflict...

https://connect.mayoclinic.org/comment/1096235/

Discussion: Type 1 diabetes and essential thrombocythemia: Anyone have both?

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2024