Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

417 total results

Comment

I am 73 and am positive for Waldenstrom’s Macroglobulinemia, MYD88 positive, CXCR4 negative. In addition, I...

https://connect.mayoclinic.org/comment/1518410/

Discussion: Anyone diagnosed with both myelofibrosis and Waldenstroms lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 3 8:55am

Comment

@janemc I’m not convinced by that argument, as Essential thrombocythemia (ET) is not contagious and cannot...

https://connect.mayoclinic.org/comment/1564791/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: May 2 10:43am

Comment

Wow That’s a bit crazy especially being that that particular blood test is very expensive! Mine...

https://connect.mayoclinic.org/comment/1058604/

Discussion: JAK2 detection accuracy

Support Group: Blood Cancers & Disorders

Posted: Apr 28, 2024

Comment

Hi @chella65 I found a relevant discussion for you with other members who have PV and...

https://connect.mayoclinic.org/comment/881483/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2023

Comment

Hi all. In December, I was diagnosed with a JAK2 mutation. Finally had my appointment with...

https://connect.mayoclinic.org/comment/231778/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2019

Comment

Hi @saucy, In this case PV is Polycythemia Vera. It’s A type of blood cancer where...

https://connect.mayoclinic.org/comment/818232/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2023

Comment

@1pearl would you mind sharing your doctors name at City of Hope? I’ve been considering going...

https://connect.mayoclinic.org/comment/1420257/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2025

Comment

I have seen my family doctor who sent me for more bloodwork. I seen a specialist...

https://connect.mayoclinic.org/comment/780564/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2022

Comment

I have been on HU for about five years. 500mg 4x week for Polycythemia Vera. I...

https://connect.mayoclinic.org/comment/1307330/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: May 18, 2025

Comment

There's a lot to take in! Our blood has four main components: White blood cells, red...

https://connect.mayoclinic.org/comment/1211059/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2025

1
…
11
12
13
14
15
…
37