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Comment

I've just got my diagnosis of AL amyloidosis today after having a bunch of testing and...

https://connect.mayoclinic.org/comment/88311/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2019

Comment

In 2021 I was diagnosed with multiple myeloma and amyloidosis. Stanford put me on a drug...

https://connect.mayoclinic.org/comment/1413538/

Discussion: Has anyone gone through remission without SCT or CAR-T

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2025

Comment

Happy to hear you are doing well. My husband was diagnosed with Cardiac Amyloidosis this past...

https://connect.mayoclinic.org/comment/898862/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

Comment

Hi @suebridges123. From my understanding, Al Amyloidosis is caused by a bone marrow disorder. In AL...

https://connect.mayoclinic.org/comment/1107012/

Discussion: What is the current protocol for al Amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2024

Comment

Problem with amyloidosis is it is hard to diagnosis because so many other diseases have same...

https://connect.mayoclinic.org/comment/1470411/

Discussion: Could this be Amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2025

Comment

@jstpeachy Thank you in advanced for including my husband in your prayers warriors. I will do...

https://connect.mayoclinic.org/comment/903397/

Discussion: My Autologous Stem Cell Transplant Journey - Mayo, Phoenix

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 28, 2023

Comment

Have not had a definitive answer to what type Amyloidosis I have . Had bone marrow...

https://connect.mayoclinic.org/comment/104722/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2018

Comment

The reason they suspected amyloids is I have trouble breathing, carpal tunnel, enlarged tongue, and neuropathy....

https://connect.mayoclinic.org/comment/842875/

Discussion: Amyloidosis symptoms, negative fat pad biopsy?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2023

Comment

Just to update: my doctor lowered Velcade dosage and That has made heartburn and stomach pain...

https://connect.mayoclinic.org/comment/217298/

Discussion: Chemo side effects

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2018

Comment

I was diagnosed with mgus April 2023, just diagnosed with lymphocytic colitis with colonoscopy biopsy. Starting...

https://connect.mayoclinic.org/comment/1035480/

Discussion: MGUS, SMM or MM With Chronic Diarrhea Or Other GI Maladie?

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2024