Skip to Content
Connect
Sign In
Join
Home
Support Groups
Blogs & Podcasts
Events
Members
Help Center
Support Groups
Blood Cancers & Disorders Support Group
Public Support Group
Follow for updates
Copy link to clipboard
Discussions
Members
More
×
Select a Tab
Members
Search discussions
Start a new discussion
plus
368 total results
All
Discussions (30)
Comments (338)
Comment
Hi Steve, I couldn't find any evidence-based mentions of serrapeptase being used to help treat myelofibrosis....
https://connect.mayoclinic.org/comment/132609/
Copy link to clipboard
Discussion:
Anyone want to talk about Myelofibrosis?
Support Group:
Blood Cancers & Disorders
Posted: Feb 24, 2017
Comment
I found it online. It's an open access article in Volume 67 (January 2024) of the...
https://connect.mayoclinic.org/comment/1226430/
Copy link to clipboard
Discussion:
Essential Thrombocytosis symptoms
Support Group:
Blood Cancers & Disorders
Posted: Jan 31 4:16pm
Comment
I couldn't get my Anagralide through hospital was going to cost the earth to get through...
https://connect.mayoclinic.org/comment/1202803/
Copy link to clipboard
Discussion:
Essential Thrombocythemia: Making treatment decisions
Support Group:
Blood Cancers & Disorders
Posted: Jan 3 2:25am
Comment
I have just been diagnosed with Myelodysplastic Syndromes ( MDS-a bone marrow decease) & Myelofibrosis (MF-blood...
https://connect.mayoclinic.org/comment/194288/
Copy link to clipboard
Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Feb 20, 2019
Comment
I am seeing Dr. Teffari at Mayo Clinic. He's the lead specialist in the world for...
https://connect.mayoclinic.org/comment/1194113/
Copy link to clipboard
Discussion:
Primary Myelofibrosis: Continue watch & wait? 2nd opinion?
Support Group:
Blood Cancers & Disorders
Posted: Dec 20, 2024
Comment
Bonnie, You will be amazed at how it will all come together with planning. Having such...
https://connect.mayoclinic.org/comment/1324245/
Copy link to clipboard
Discussion:
My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Support Group:
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy
Posted: Jun 10 10:56am
Comment
Welcome to Connect, @ronegeorge. Thank you for sharing your encouraging experience with using Hydroxyurea to control...
https://connect.mayoclinic.org/comment/1081066/
Copy link to clipboard
Discussion:
How fast do you start to feel hydroxyurea symptoms?
Support Group:
Blood Cancers & Disorders
Posted: Jun 5, 2024
Comment
I’m a 83-year-old female, diagnosed with lymphoma and myelofibrosis (JAK2 mutation) in June of 2024. I’ve...
https://connect.mayoclinic.org/comment/1252690/
Copy link to clipboard
Discussion:
Anyone want to talk about Myelofibrosis?
Support Group:
Blood Cancers & Disorders
Posted: Mar 7 3:11pm
Comment
Over the last few years, studies have shown that reducing the allele burden for PV and...
https://connect.mayoclinic.org/comment/1222127/
Copy link to clipboard
Discussion:
What are pros of hydroxyurea vs other methods of lowering platelets?
Support Group:
Blood Cancers & Disorders
Posted: Jan 26 10:38am
Comment
Hi circawdm, I would agree with what you said if one has ET. My O/H told...
https://connect.mayoclinic.org/comment/1316170/
Copy link to clipboard
Discussion:
New to Hydrea for ET
Support Group:
Blood Cancers & Disorders
Posted: May 30 12:50am
First
Previous
...
9
10
11
12
13
14
15
...
Next
Last
×
Start a discussion
Please
sign in
or
register
to start a discussion.
Connect
Join Mayo Clinic Connect
Connect with thousands of patients and caregivers for support and answers.
Hosted and moderated by Mayo Clinic.
Safe and secure.
Connect
Public Support Group 
Connect