Blood Cancers & Disorders Support Group

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Comment

@jak2mpnpositive I had ET MPN for many years and now have myelofibrosis due to the JAK2...

https://connect.mayoclinic.org/comment/1489467/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 23 12:36pm

Comment

My doctor has not said anything to me about bone health exactly. The treatment I am...

https://connect.mayoclinic.org/comment/1536428/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: 2 days ago

Comment

Is there anyone out there that has been diagnosed with both polycythemia vera and myelo fibrosis?...

https://connect.mayoclinic.org/comment/781275/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2022

Comment

I have been taking 5ml Jakafi twice a day for three years. It has been a...

https://connect.mayoclinic.org/comment/1174412/

Discussion: Anyone had adverse effects from Jakafi (ruxolitinib) for PV?

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2024

Comment

I would like to invite @gael, @wellness3070, @jfinlay, @djr, and @bijou have all discussed taking jakafi...

https://connect.mayoclinic.org/comment/256902/

Discussion: Are you taking medication for JAK2? How does it affect you?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2019

Comment

This is the first discussion I have seen concerning myelofibrosis. I was diagnosed with Primary myelofibrosis...

https://connect.mayoclinic.org/comment/1209703/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2025

Comment

@blu555 , thanks for sharing your Jakafi experience, being a fairly new drug there is not...

https://connect.mayoclinic.org/comment/1470135/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2025

Comment

Thank you Lori, I was diagnosed in August but only started HU two weeks ago when...

https://connect.mayoclinic.org/comment/1306940/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: May 18, 2025

Comment

After having terrible side effects while taking HU my doctor had me switch to Jakafi. Three...

https://connect.mayoclinic.org/comment/994946/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2024

Comment

I also am taking Jakafi. It helps immensely with PV side effects however I still need...

https://connect.mayoclinic.org/comment/887767/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2023