Blood Cancers & Disorders Support Group

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Comment

Hello, Have you had the JAK2 test yet? I’m sorry I didn’t see your previous post.

https://connect.mayoclinic.org/comment/898898/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

Comment

Hi, im jak2 negative with continous high platelets 500-800 range im 31 asymptomatic , discovered over...

https://connect.mayoclinic.org/comment/194358/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2020

Comment

@sdduan Question: I started HU and after 30 days I experienced extreme flu like symptoms, and...

https://connect.mayoclinic.org/comment/1582420/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: May 24 8:43pm

Comment

Has anyone suggested DNA/genetic testing? That's what my Heme doc (an MPN specialist) did, and I...

https://connect.mayoclinic.org/comment/1054171/

Discussion: JAK2 detection accuracy

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2024

Comment

I'm 71 and have ET with JAK2 mutation. A DEXA scan earlier this month showed normal...

https://connect.mayoclinic.org/comment/998807/

Discussion: MPN and osteoporosis, any of you have insufficiency fractures?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2024

Comment

@thlas1971 Hi there! Sorry for the late reply. I uploaded my 23 and Me raw data...

https://connect.mayoclinic.org/comment/231796/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2019

Comment

@mydadhas2024, you are asking a lot of great questions. I know this can be very confusing...

https://connect.mayoclinic.org/comment/1290898/

Discussion: MPNs - I have so many questions.

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2025

Comment

@janemc I also have joint pain with Jak2 ET and have been taking Tramadol for years...

https://connect.mayoclinic.org/comment/1576357/

Discussion: Hydrea and joint pain

Support Group: Blood Cancers & Disorders

Posted: May 17 6:54am

Comment

@janemc I’m not convinced by that argument, as Essential thrombocythemia (ET) is not contagious and cannot...

https://connect.mayoclinic.org/comment/1564791/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: May 2 10:43am

Comment

What is the diagnosis for a platelet count in 770,000 range and no Jak2 mutation? Is...

https://connect.mayoclinic.org/comment/252019/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2019

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