Blood Cancers & Disorders Support Group

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Comment

@mydadhas2024, you are asking a lot of great questions. I know this can be very confusing...

https://connect.mayoclinic.org/comment/1290898/

Discussion: MPNs - I have so many questions.

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2025

Comment

Has anyone suggested DNA/genetic testing? That's what my Heme doc (an MPN specialist) did, and I...

https://connect.mayoclinic.org/comment/1054171/

Discussion: JAK2 detection accuracy

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2024

Comment

I'm 71 and have ET with JAK2 mutation. A DEXA scan earlier this month showed normal...

https://connect.mayoclinic.org/comment/998807/

Discussion: MPN and osteoporosis, any of you have insufficiency fractures?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2024

Comment

@thlas1971 Hi there! Sorry for the late reply. I uploaded my 23 and Me raw data...

https://connect.mayoclinic.org/comment/231796/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2019

Comment

I have never had labs identifying jak2 only a bone marrow biopsy. It seems that would...

https://connect.mayoclinic.org/comment/1054100/

Discussion: JAK2 detection accuracy

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2024

Comment

I will look into that with my Dr , can I ask your age? how high...

https://connect.mayoclinic.org/comment/1023672/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2024

Comment

Today I received results for the JAK2 V617F test and I am positive. A home sleep...

https://connect.mayoclinic.org/comment/783056/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2022

Comment

Yes, hemo scheduled JAK2 test. That was neg, but false negs happen, so she did the...

https://connect.mayoclinic.org/comment/1054719/

Discussion: JAK2 detection accuracy

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2024

Comment

My husband was diagnosed with primary Myelofibrosis with JAK2 mutation last June. Has anyone looked into...

https://connect.mayoclinic.org/comment/1493287/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 29 10:25am

Comment

Blood draw today. Platelets were down from 11/2. I know the platelets go down when I...

https://connect.mayoclinic.org/comment/973027/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2023