Blood Cancers & Disorders Support Group

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Comment

It's been a while since the last post, but since I just picked up my prescription...

https://connect.mayoclinic.org/comment/1567502/

Discussion: Anyone with Essential Thrombocythemia & Sjogrens or autoimmune?

Support Group: Blood Cancers & Disorders

Posted: May 5 4:55pm

Comment

Re medic alert bracelets: Now that I am in a hospital system with universal e-charts, I...

https://connect.mayoclinic.org/comment/1314630/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 28, 2025

Comment

Hi MaryLynda, I moved your question to this exiting discussion about ET so you can connect...

https://connect.mayoclinic.org/comment/641119/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2021

Comment

Hello @lisadej1. I would like to invite @carlavan, @shenriq, @susanellis, @misty45, and @esperanzam to this discussion...

https://connect.mayoclinic.org/comment/255604/

Discussion: Chemo and liver enzymes

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2019

Comment

I was diagnosed right away with Essential Thrombocythemia. (ET) having 1,250,000 platelets when first diagnosed. I...

https://connect.mayoclinic.org/comment/1051269/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2024

Comment

Welcome @christinele. You can choose to follow only discussions related to ET and JAK 2. Here's...

https://connect.mayoclinic.org/comment/845309/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

Comment

@maine here's the procedure code that was on my EOB when I had the Jak 2...

https://connect.mayoclinic.org/comment/1530266/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 18 9:21pm

Comment

I am taking 500 mg Hydrea on MWF. Still a little high but hematologist doesn't seem...

https://connect.mayoclinic.org/comment/994365/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2024

Comment

@gajokos hi~ I was diagnosed with sMF, in June 2025, but was a little out of...

https://connect.mayoclinic.org/comment/1504852/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 13 12:04pm

Comment

@snacker1206 It’s my pleasure to be of help to you. This is the beauty of our...

https://connect.mayoclinic.org/comment/607970/

Discussion: Delayed pain after bone marrow biopsy??

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2021

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