Blood Cancers & Disorders Support Group

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Comment

I was diagnosed right away with Essential Thrombocythemia. (ET) having 1,250,000 platelets when first diagnosed. I...

https://connect.mayoclinic.org/comment/1051269/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2024

Comment

essential thrombocythemia (ET) can sometimes be diagnosed without a bone marrow biopsy if a driver mutation...

https://connect.mayoclinic.org/comment/1507899/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 17 8:14am

Comment

@nolablance This is an interesting find! I do have Granuloma Anulare on my forearms and elbows...

https://connect.mayoclinic.org/comment/1495639/

Discussion: Please is there anyone diagnosed with chronic granulomatous disease?

Support Group: Blood Cancers & Disorders

Posted: Feb 1 11:19am

Comment

Hi @milestogo Although it is more common for people over 50-ish to develop blood conditions such...

https://connect.mayoclinic.org/comment/1524561/

Discussion: ET under 50: I’m always the baby in these groups.

Support Group: Blood Cancers & Disorders

Posted: Mar 11 10:16am

Comment

@tamijulien I just got back from Mayo Clinic in Phoenix where I saw wonderful hematologist oncologist...

https://connect.mayoclinic.org/comment/1550447/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 14 12:50pm

Comment

Issues with our eyes are scary for sure. To offer a quick (not necessarily final) answer...

https://connect.mayoclinic.org/comment/1556601/

Discussion: Essential Thrombocythemia JAK2 symptoms of dizziness/vision distortion

Support Group: Blood Cancers & Disorders

Posted: 5 days ago

Comment

I am taking 500 mg Hydrea on MWF. Still a little high but hematologist doesn't seem...

https://connect.mayoclinic.org/comment/994365/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2024

Comment

@snacker1206 It’s my pleasure to be of help to you. This is the beauty of our...

https://connect.mayoclinic.org/comment/607970/

Discussion: Delayed pain after bone marrow biopsy??

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2021

Comment

Most ET patients live a normal life span. My dad had it and lived to be...

https://connect.mayoclinic.org/comment/1525738/

Discussion: Newly Diagnosed Essential Thrombocytosis

Support Group: Blood Cancers & Disorders

Posted: Mar 13 7:05am

Comment

Hi, I am new to this group. My 27 yr old daughter was diagnosed with essential...

https://connect.mayoclinic.org/comment/1041175/

Discussion: Anybody else have Factor V Leiden?

Support Group: Blood Cancers & Disorders

Posted: Mar 27, 2024