Blood Cancers & Disorders Support Group

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Comment

Find out tomorrow what my regime of Chemo will be !!! Hopefully. How did they find...

https://connect.mayoclinic.org/comment/1476614/

Discussion: Does anyone have Amyloidosis as their primary condition?

Support Group: Blood Cancers & Disorders

Posted: Jan 7 11:02am

Comment

I've just got my diagnosis of AL amyloidosis today after having a bunch of testing and...

https://connect.mayoclinic.org/comment/88311/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2019

Comment

I would advise anyone who is diagnosed or suspects they may have AL Amyloidosis to get...

https://connect.mayoclinic.org/comment/1472654/

Discussion: Could this be Amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 2 7:49am

Comment

I was diagnosed with MGUS about 4.5 years ago and now I have been Diagnosed with...

https://connect.mayoclinic.org/comment/1100052/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2024

Comment

In 2021 I was diagnosed with multiple myeloma and amyloidosis. Stanford put me on a drug...

https://connect.mayoclinic.org/comment/1413538/

Discussion: Has anyone gone through remission without SCT or CAR-T

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2025

Comment

Diagnosed over 5 years ago with light chain amyloidosis and multiple myeloma. Did the 6 month...

https://connect.mayoclinic.org/comment/1479194/

Discussion: Does anyone have Amyloidosis as their primary condition?

Support Group: Blood Cancers & Disorders

Posted: Jan 10 7:42pm

Comment

Hi @suebridges123. From my understanding, Al Amyloidosis is caused by a bone marrow disorder. In AL...

https://connect.mayoclinic.org/comment/1107012/

Discussion: What is the current protocol for al Amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2024

Comment

Happy to hear you are doing well. My husband was diagnosed with Cardiac Amyloidosis this past...

https://connect.mayoclinic.org/comment/898862/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

Comment

@jstpeachy Thank you in advanced for including my husband in your prayers warriors. I will do...

https://connect.mayoclinic.org/comment/903397/

Discussion: My Autologous Stem Cell Transplant Journey - Mayo, Phoenix

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 28, 2023

Comment

The reason they suspected amyloids is I have trouble breathing, carpal tunnel, enlarged tongue, and neuropathy....

https://connect.mayoclinic.org/comment/842875/

Discussion: Amyloidosis symptoms, negative fat pad biopsy?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2023