Blood Cancers & Disorders Support Group

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Comment

Your questions are 2 I have never asked the oncologist about so I don't really know...

https://connect.mayoclinic.org/comment/1146313/

Discussion: Free light chain ratio in MGUS

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2024

Comment

Hi there. Your lab results are surprisingly similar to what mine were with the exception of...

https://connect.mayoclinic.org/comment/1059648/

Discussion: M-Spike, High Kappa and Kappa/Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2024

Comment

@trixie1, recently (Jan 2023) the FDA approved zanubrutinib (Brukinsa) for the treament of chronic lymphocytic leukemia...

https://connect.mayoclinic.org/comment/912886/

Discussion: Any new treatments for SMZL? What do you take for maintenance?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

Comment

I am sorry your husband is experiencing pleural effusion while taking Ibrutinib. I was on Ibrutinib...

https://connect.mayoclinic.org/comment/902391/

Discussion: With Waldenstrom, what side effects did you have with ibrutinib?

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2023

Comment

Hi @belcar45, "The liver is the largest organ in the human body. During development, liver size...

https://connect.mayoclinic.org/comment/856094/

Discussion: Waldenstrom’s Macroglobulinemia Liver size?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2023

Comment

I understand your concern for you son and the trauma of seeing your body failing you....

https://connect.mayoclinic.org/comment/736360/

Discussion: Follicular Lymphoma: looking to connect with others

Support Group: Blood Cancers & Disorders

Posted: Aug 11, 2022

Comment

I find your post informative because I was diagnosed with MGUS in 2019. It’s a blood...

https://connect.mayoclinic.org/comment/729097/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2022

Comment

What’s your classification IgA, IgG or I’m Kappa light chain IgM MGUS. My older brother James...

https://connect.mayoclinic.org/comment/728931/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2022

Comment

Hi @kabue9, I moved your question about WM and treatment with zanubrutinib (Brukinsa) to this relevant...

https://connect.mayoclinic.org/comment/1347391/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2025

Comment

Hi @ranchgal4sure! Ok, this is a really unique name and I’d love to hear the story...

https://connect.mayoclinic.org/comment/1247521/

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2025

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