Blood Cancers & Disorders Support Group

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Comment

I am sorry to read that your levels indicate the need for plasmapheresis due to hyperviscosity...

https://connect.mayoclinic.org/comment/1201340/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2024

Comment

We have an update, although more diagnostic have to be run to fully confirm things, followed...

https://connect.mayoclinic.org/comment/1268759/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 28 2:02pm

Comment

I was recently diagnosed with a rare blood cancer called Waldenstrom's Macroglobulinemia (aka: Lymphoplasmacytic Lymphoma). I've...

https://connect.mayoclinic.org/comment/1062621/

Discussion: New to kappa light chain testing

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024

Comment

I have been taking Brukinsa for 3 months as treatment for Waldenstrom's Macroglobulinemia and noticed some...

https://connect.mayoclinic.org/comment/1149136/

Discussion: Bruising unexplained

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2024

Comment

Hi there, I was diagnosed with MGUS back in 2017 after decades of dealing with polyneuropathy...

https://connect.mayoclinic.org/comment/1062642/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024

Comment

Welcome to Connect, @jessabell I see you’re newly diagnosed with WM. We have quite a few...

https://connect.mayoclinic.org/comment/994283/

Discussion: Waldenstrom macroglobulinemia: What can I expect with chemo?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2024

Comment

Now having a diagnosis, I just filled out my Bio and will repost here, because it...

https://connect.mayoclinic.org/comment/981394/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

Comment

Hi @fyrizonly, I can understand the unsettling feeling of not knowing what to expect, especially when...

https://connect.mayoclinic.org/comment/970011/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2023

Comment

I had low iron in 10s for 15 years, oral iron always brought it back up....

https://connect.mayoclinic.org/comment/796597/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2023

Comment

Thank you for the suggestions but my bad guys are headed towards a very rare form...

https://connect.mayoclinic.org/comment/731681/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2022