Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

475 total results

Comment

My wife was diagnosed with MF 4 months ago due to MPL mutation. We just heard...

https://connect.mayoclinic.org/comment/132606/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2017

Comment

I, too, wanted a second opinion. I have Primary Myelofibrosis. My local clinic boasts as being...

https://connect.mayoclinic.org/comment/1420021/

Discussion: Seeking opinion about where to get a second opinion.

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2025

Comment

The way I understand it MPN specialists are hematologists with sub speciality of MPN’s such as...

https://connect.mayoclinic.org/comment/797781/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2023

Comment

Sounds like your in good hands. Yes, the liposomal Glutathione form is out front. It's recommended...

https://connect.mayoclinic.org/comment/132661/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2020

Comment

Sorry, but I find it difficult to know how to enter the discussion without just replying...

https://connect.mayoclinic.org/comment/1165808/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 31, 2024

Comment

Hello - I am contemplating going on momelotinib or a clinical trial that would address my...

https://connect.mayoclinic.org/comment/1376267/

Discussion: Primary Myelofibrosis with JAK2: Anyone have Ojjaara (momelotinib)?

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2025

Comment

@luvs2dance Thank you for sharing. I'm sorry to hear that it has progressed to Myelofibrosis. How...

https://connect.mayoclinic.org/comment/1278844/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2025

Comment

Myelofibrosis (Diagnosed by Mayo 7 years ago) is one of those conditions which many doctors know...

https://connect.mayoclinic.org/comment/714720/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2022

Comment

I would be happy to assist in anyway that I can. I am one year into...

https://connect.mayoclinic.org/comment/719904/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2022

Comment

Hi, I hope this discussion restarts! After having high platelets on a routine physical with lab...

https://connect.mayoclinic.org/comment/1351541/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2025