Blood Cancers & Disorders Support Group

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Comment

Hello, @lmkmom I’ve been reading through a couple of your previous posts to see that you’ve...

https://connect.mayoclinic.org/comment/1320465/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2025

Comment

Bad news last time at the doc office, the doctor told me that I suffer from...

https://connect.mayoclinic.org/comment/1044397/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2024

Comment

I see UVA Cancer Center also. I have prefibrotic myelofibrosis and they have a number of...

https://connect.mayoclinic.org/comment/1424471/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Oct 27, 2025

Comment

I am new to this site and having some difficulty following threads, but my husband was...

https://connect.mayoclinic.org/comment/1243859/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2025

Comment

@ tinak123 I am 70 YO, and was diagnosed with ET when I was 50. I...

https://connect.mayoclinic.org/comment/1399081/

Discussion: Living with ET

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2025

Comment

I have the typical high and low blood count concerns that most myelofibrosis patients deal with,...

https://connect.mayoclinic.org/comment/1426293/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2025

Comment

I was diagnosed June 2025 MPL mutation with SRSF2 mutation. I’m on a clinical trial for...

https://connect.mayoclinic.org/comment/1501715/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 9 11:56am

Comment

@carolgk Good morning? Thank you for mentioning Vonjo. I will ask my oncologist about it. I...

https://connect.mayoclinic.org/comment/1537693/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 29 7:16am

Comment

I get bulletins from Patient Power about drug therapies, and am bookmarking this one that lays...

https://connect.mayoclinic.org/comment/1329826/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2025

Comment

Hi @pearly, Please note that the reply above was from @gael, who is also living with...

https://connect.mayoclinic.org/comment/50536/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2017