Blood Cancers & Disorders Support Group

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Comment

My husband was diagnosed at 69, a year ago, with Primary Myelofibrosis including Jak2 mutation. A...

https://connect.mayoclinic.org/comment/693147/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 26, 2022

Comment

I think in the United States some insurance companies make you do step therapy…hydroxyurea first before...

https://connect.mayoclinic.org/comment/790422/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2022

Comment

@ettap , Great comment. Most importantly, because it pertains to me, as well!(!) Anyway, I have...

https://connect.mayoclinic.org/comment/652790/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2021

Comment

Hi Steve My case is similar to yours. I was treated with Hydroxyurea for7 yrs for...

https://connect.mayoclinic.org/comment/913626/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2023

Comment

My buddy was diagnosed with Myelofibrosis at Mayo a few weeks ago. He will start on...

https://connect.mayoclinic.org/comment/697402/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2022

Comment

My husband had Lymes and Erlichiosis (another tick-borne disease) 12-15 years ago. In 2021 he was...

https://connect.mayoclinic.org/comment/764388/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2022

Comment

Welcome to Connect, @snakebite It’s so important for us to keep a positive countenance especially when...

https://connect.mayoclinic.org/comment/893512/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

Comment

I, too am looking for confirmation ref serrapeptase and myelofibrosis. I took a nice product for...

https://connect.mayoclinic.org/comment/132626/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: May 14, 2020

Comment

I was started on HU in November to lower platelets, but have experienced extreme fatigue, shortness...

https://connect.mayoclinic.org/comment/840952/

Discussion: Hematocrit Continues to Drop After Stopping Hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2023

Comment

Fantastic. If you scroll to the bottom of this information from Mayo Clinic, you'll find a...

https://connect.mayoclinic.org/comment/1103248/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 10 8:20pm