Blood Cancers & Disorders Support Group

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Comment

Thank you for your reply! I have also been thinking of starting intermittent fasting. Will give...

https://connect.mayoclinic.org/comment/1222771/

Discussion: Weight gain and high cholesterol with Jakafi

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2025

Comment

Hello sorry for delayed response. I have had PV with JAK2 for almost 5 years. I...

https://connect.mayoclinic.org/comment/788322/

Discussion: Anyone with PV have insensitivity to cold?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2022

Comment

I’ve had Polycythemia Vera for 14 yrs, then RBC went up, I was prescribed taking 1000mg...

https://connect.mayoclinic.org/comment/1270863/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Mar 31, 2025

Comment

Hi, you mentioned your husband was weaning off now regarding his taking Jakafi. Does it appear...

https://connect.mayoclinic.org/comment/909535/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2023

Comment

I had symptoms for many years finally diagnosed three years ago. Jakafi twice a day helps...

https://connect.mayoclinic.org/comment/760171/

Discussion: Polycythemia: Are you asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2022

Comment

Good morning. I’m 71. I was diagnosed with myelofibrosis a few years ago. Was asymptomatic at...

https://connect.mayoclinic.org/comment/1502910/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 11 6:10am

Comment

I had severe itching until they gave me Jakafi. Absolute miracle drug for me. No itching,...

https://connect.mayoclinic.org/comment/1303779/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: May 14, 2025

Comment

I am currently taking Jakafi. It's not a chemo drug and it doesn't have the side...

https://connect.mayoclinic.org/comment/1014197/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2024

Comment

@jak2mpnpositive I had ET MPN for many years and now have myelofibrosis due to the JAK2...

https://connect.mayoclinic.org/comment/1489467/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 23 12:36pm

Comment

Hello PV friend ! I have been on JAKAFI FOR 10 months took 20 milligrams a...

https://connect.mayoclinic.org/comment/1310325/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: May 22, 2025