Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

289 total results

Comment

I have essential thrombocythemia (ET), too many platelets. All other counts were normal as of January,...

https://connect.mayoclinic.org/comment/826965/

Discussion: Essential Thrombocytosis - what's your experience with Jakifi?

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2023

Comment

Hi. I asked my hematologist/oncologist which stage I'm in for each cancer and the number of...

https://connect.mayoclinic.org/comment/284528/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2019

Comment

I am taking 500 mg Hydrea on MWF. Still a little high but hematologist doesn't seem...

https://connect.mayoclinic.org/comment/994365/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2024

Comment

@snacker1206 It’s my pleasure to be of help to you. This is the beauty of our...

https://connect.mayoclinic.org/comment/607970/

Discussion: Delayed pain after bone marrow biopsy??

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2021

Comment

Hi, I am new to this group. My 27 yr old daughter was diagnosed with essential...

https://connect.mayoclinic.org/comment/1041175/

Discussion: Anybody else have Factor V Leiden?

Support Group: Blood Cancers & Disorders

Posted: Mar 27, 2024

Comment

Just recently diagnosed myself, at 67, and still wrapping my brain around this. Also new to...

https://connect.mayoclinic.org/comment/1260457/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Mar 17 2:36pm

Comment

Basically, all of your symptoms of anemia and the ET may related. You’re not getting the...

https://connect.mayoclinic.org/comment/808454/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

Comment

Hi Lynne, I see @janemc's wise words about the lack of information. There are a couple...

https://connect.mayoclinic.org/comment/1282117/

Discussion: Like to know more. Just told I have Triple Negative MPN.

Support Group: Blood Cancers & Disorders

Posted: Apr 14 10:25pm

Comment

You might be interested in the MPN Research Foundation site. It notes that women are 1.5...

https://connect.mayoclinic.org/comment/1047757/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2024

Comment

I was diagnosed with essential thrombocythemia in January, and have been taking hydroxyurea since then. Between...

https://connect.mayoclinic.org/comment/729701/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2022