Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

330 total results

Comment

Hi Steve, Welcome to Connect. ET, or essential thrombocythemia is one of a group of blood...

https://connect.mayoclinic.org/comment/1145659/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2024

Comment

Hi @jola13, there are several members living with essential thrombocythemia (ET) here like @shenriq @jbgeorge @jackt00...

https://connect.mayoclinic.org/comment/876115/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2023

Comment

I have gotten my platelets down to 388,000 but it has take a long time and...

https://connect.mayoclinic.org/comment/792897/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2023

Comment

The standard of care by World Health Organization for essential thrombocythemia is a bone marrow biopsy...

https://connect.mayoclinic.org/comment/845709/

Discussion: Thrombocythemia - GP can’t find the cause

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023

Comment

After a diagnosis of Essential Thrombocythemia just before the Covid outbreak, (with Hydro treatment and fluctuating...

https://connect.mayoclinic.org/comment/781995/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2022

Comment

Re medic alert bracelets: Now that I am in a hospital system with universal e-charts, I...

https://connect.mayoclinic.org/comment/1314630/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 28, 2025

Comment

Hi MaryLynda, I moved your question to this exiting discussion about ET so you can connect...

https://connect.mayoclinic.org/comment/641119/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2021

Comment

Hello @lisadej1. I would like to invite @carlavan, @shenriq, @susanellis, @misty45, and @esperanzam to this discussion...

https://connect.mayoclinic.org/comment/255604/

Discussion: Chemo and liver enzymes

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2019

Comment

Hi @julmo Welcome to Mayo Connect. Thank you for sharing your story with having ET and...

https://connect.mayoclinic.org/comment/1516539/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Feb 28 12:04pm

Comment

I was diagnosed right away with Essential Thrombocythemia. (ET) having 1,250,000 platelets when first diagnosed. I...

https://connect.mayoclinic.org/comment/1051269/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2024