Blood Cancers & Disorders Support Group

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Comment

Hi @honeymamabee, I expanded the title of your discussion to reflect your question and added it...

https://connect.mayoclinic.org/comment/1117967/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2024

Comment

FLC is free light chains (kappa and lambda). Measurement of these is used to help diagnoses...

https://connect.mayoclinic.org/comment/1144049/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 19, 2024

Comment

As you might remember, I have Cancer>MM>Amyloidosis>Gelsolin, among other things. As you know, Gelsolin is a...

https://connect.mayoclinic.org/comment/621871/

Discussion: Want to help Mayo Clinic improve our Multiple Myeloma website?

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2021

Comment

I have had MGUS for 4.5 years. The strategy has been to monitor it with blood...

https://connect.mayoclinic.org/comment/1101928/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 8, 2024

Comment

Amyloidosis can be tested with a fat pad biopsy. They take a small bit of abdominal...

https://connect.mayoclinic.org/comment/1378108/

Discussion: Testing for Amyloids with MGUS

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2025

Comment

Hi Becky, if you go to this site again that @colleenyoung posted, you’ll see a box...

https://connect.mayoclinic.org/comment/738621/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

Comment

Hi @jan44, I'm sure @vmarra would appreciate connecting with you. I see AL amyloidosis is a...

https://connect.mayoclinic.org/comment/775150/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2022

Comment

Hello @sstouten, Welcome to Connect. I'm sorry to hear about your diagnosis, and so glad that...

https://connect.mayoclinic.org/comment/169956/

Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2017

Comment

I'm tagging @robertreidrx @jam5 and others who have experience with Wild-type ATTR Amyloidosis (ATTRwt) to join...

https://connect.mayoclinic.org/comment/1265110/

Discussion: Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2025

Comment

Is anyone dealing with either of these cancers? My oncologist is currently trying to rule out...

https://connect.mayoclinic.org/comment/1276256/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2025