Blood Cancers & Disorders Support Group

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Comment

Until MDS, my body produced my blood. Relying on someone else to produce my blood for...

https://connect.mayoclinic.org/comment/1374898/

Discussion: My MDS does not respond to treatments. What's next?

Support Group: Blood Cancers & Disorders

Posted: Aug 20 9:17am

Comment

Good morning..has anyone taken this treatment for mds..that would be hopeful for me Thank you

https://connect.mayoclinic.org/comment/1058610/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Apr 28, 2024

Comment

MDS 5q what happens now?I was diagnosed with Mds 5Q in 2019 did required blood tests...

https://connect.mayoclinic.org/comment/1080101/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2024

Comment

Hi Brenda, As someone else who posted here said “Be your own advocate.” Since you are...

https://connect.mayoclinic.org/comment/963403/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

Comment

I was diagnosed last year. I have MDS with del(5q). The initial diagnosis was confirmed with...

https://connect.mayoclinic.org/comment/1031602/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2024

Comment

Thanks! Right now, we are still figuring all this out. My numbers are low, too, especially...

https://connect.mayoclinic.org/comment/1073246/

Discussion: Myelodysplastic Syndrome and Sjogren's

Support Group: Blood Cancers & Disorders

Posted: May 23, 2024

Comment

Diagnosed with MDS. I am very interested if there are other drugs than Vidaza? And if...

https://connect.mayoclinic.org/comment/1283488/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Apr 16 4:12pm

Comment

No tx yet. Fish analysis MDs extended: issues: Del5q, trisomy 8 and 19 all detected abnormal.

https://connect.mayoclinic.org/comment/1202390/

Discussion: Anyone living with MDS Extended diagnosis experience?

Support Group: Blood Cancers & Disorders

Posted: Jan 2 11:02am

Comment

Hi Debbie, Don’t have a clue what caused my MDS. I had breast cancer 17 years...

https://connect.mayoclinic.org/comment/1379844/

Discussion: My MDS does not respond to treatments. What's next?

Support Group: Blood Cancers & Disorders

Posted: Aug 26 1:48pm

Comment

@garyrp, I apologize for my delayed welcome to Connect. If you don't mind, are you comfortable...

https://connect.mayoclinic.org/comment/196818/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: May 7, 2018