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I went looking for the current research for ET/JAK2 and found this: https://www.bing.com/search?q=how%27s%20the%20treatment%20research%20doing%20for%20etjak2%20gene&qs=n&form=QBRE&sp=-1&ghc=1&lq=0&pq=how%27s%20the%20treatment%20research%20doing%20for%20etjak2%20gene&sc=12-50&sk=&cvid=5ED8703EEE4B4EC98686389E6090F7D1
https://connect.mayoclinic.org/comment/1588661/
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Im recently diagnosed with acquired von Willebrand and Jak2, my platelets are around 600. I was...
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Welcome to Connect, @sunbird09 Over time, some people with PV may develop MF. This occurs if...
Discussion
Essential Thrombocythemia (ET): foods, diet, nutrition?
Hello, My name is Isabelle, I’m 55 and I was diagnosed a month ago with Essential Thrombocythemia, JAK2 mutation. I’m waiting on my bone marrow...
Discussion
Does anyone have information on PV with a low hemoglobin/ red count
A year and a half ago, I presented a hemoglobin of 7g with no evidence of bleeding in upper or lower GI as per scans....
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How did you make the final decision to begin HU protocol for ET?
Hi, I continue to research and learn from others with ET. I am 57, and diagnosed this past year. Jak2 positive, ET. I may have...
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Spleen involvement in ET
Hello, I am wondering what the symptoms are of beginning spleen involvement in ET. I was dx'd with ET in 2013 . My Internal Medicine...
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Medicines for reducing fibrosis in polycythemia vera patients
I am a PV patient, currently age 50, JAK2 verified, producing a tremendous amount of red blood cells (started treatments at a 72% Htc). Besides...
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Essential Thrombocythemia, anemia and Celiac Disease, the Trifecta
I learned I had ET through a routine blood test during my annual Medicare checkup last fall. Since then I have found I have the...
Discussion
What might this be? polycythemia vera, PCOS, lupus, something else?
Polycythemia with all negative results????????I am a 29 year old female and have been feeling not myself for almost 2 years now. Below I will...
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Abnormal bloodwork for years
I’m actually waiting to see if Mayo Clinic will accept my case, but I wonder if anyone else out there is dealing with or has...
Discussion
Is my treatment a bit aggressive?
Hello, I have just been diagnosed with MPN with JAK2 mutation and negative for the other BCR/ABL 1 mutations. Platelets are 639 on 4/22/24. Everything...
Discussion
Has anyone had the Jakifi box test? My Blood % is 0!
Has anyone had any experience with the Jakifi box test?My HO was excited to use it to see if Jakafi was working in mycase. It...
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