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Comment

Hi Becky, if you go to this site again that @colleenyoung posted, you’ll see a box...

https://connect.mayoclinic.org/comment/738621/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

Comment

My diagnosis is in. Negative for amyloidosis. A hypertrophic, asymmetrical heart wall septum, plus a slightly...

https://connect.mayoclinic.org/comment/1220047/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2025

Comment

@kayabbott I had the abdomen biopsy that came back negative. However, I had a spinal biopsy...

https://connect.mayoclinic.org/comment/1456295/

Discussion: Could this be Amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2025

Comment

Amyloidosis can be tested with a fat pad biopsy. They take a small bit of abdominal...

https://connect.mayoclinic.org/comment/1378108/

Discussion: Testing for Amyloids with MGUS

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2025

Comment

I have had MGUS for 4.5 years. The strategy has been to monitor it with blood...

https://connect.mayoclinic.org/comment/1101928/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 8, 2024

Comment

Hi @jan44, I'm sure @vmarra would appreciate connecting with you. I see AL amyloidosis is a...

https://connect.mayoclinic.org/comment/775150/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2022

Comment

Hello @sstouten, Welcome to Connect. I'm sorry to hear about your diagnosis, and so glad that...

https://connect.mayoclinic.org/comment/169956/

Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2017

Comment

Hi @jebcyn Welcome to Mayo Connect. It’s inspirational that you’re a 10 year survivor! Would you...

https://connect.mayoclinic.org/comment/782272/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

Comment

As you might remember, I have Cancer>MM>Amyloidosis>Gelsolin, among other things. As you know, Gelsolin is a...

https://connect.mayoclinic.org/comment/621871/

Discussion: Want to help Mayo Clinic improve our Multiple Myeloma website?

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2021

Comment

@sigman I hope your amyloidosis treatment is effective. Amyloidosis is a hard. My bone marrow (MGUS),...

https://connect.mayoclinic.org/comment/1456324/

Discussion: Could this be Amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2025