Connect
Public Support Group 541 total results
Discussion
What are treatments for myelofibrosis?
What are treatments for mylofibrosis! I was just diagnosed with it?
Discussion
Myelofibrosis, Ojjaara and anemia
Anybody in this group diagnosed with Myelofibrosis taking Ojjaara and still suffering from anemia? Low red blood cells, platelets are low, hemoglobin low, white blood...
Discussion
Are there support groups for Myelofibrosis?
Diagnosed with Myelofibrosis living in California. Would like to find out about group support.
Discussion
Myelofibrosis w/ JAK2 mutation
I have recently been diagnosed and want to know people's experiences. Has anyone been through a clinical trial? Taken hydroxyurea? Not done anything? Worked with...
Discussion
Primary Myelofibrosis diagnosis in 40’s
I was shocked to learn my diagnosis because of my age. So many people are diagnosed with PMF in there 60’s. Is there anyone else...
Discussion
Anyone have Myelofibrosis (CMS-HCC)?
Anyone else have Myelofibrosis (CMS-HCC)? Was diagnosed with it beginning of Dec 2025.Currently taking Jakafi to slow progress, of course not a cure but it...
Discussion
Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia
Does anyone on this site have pre-fibrotic pm or know where I can get some good information. I am still a week away from a...
Discussion
Is Myelofibrosis (MF) the same as Myelodyplastic syndrome?
Is Mylofibrosis the same as mylodisplastic syndrome?
Discussion
Anyone want to talk about Myelofibrosis?
Anyone out there wishing to discuss above diagnosis?
Discussion
Anyone diagnosed with both myelofibrosis and Waldenstroms lymphoma?
I was diagnosed with myelofibrosis two years ago and started Hydrea 250 mg daily with no adverse results.Now Waldenstroms lymphoma has been added to the...
Comment
Hello fellow Myelofibrosis patients. Has a physician discussed how Myelofibrosis affects bone health with you? Does...
https://connect.mayoclinic.org/comment/1536368/
Connect