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Public Support Group 419 total results
Discussion
Are their support groups for Myelofibrosis?
Diagnosed with Myelofibrosis living in California. Would like to find out about group support.
Discussion
What are treatments for myelofibrosis?
What are treatments for mylofibrosis! I was just diagnosed with it?
Discussion
Myelofibrosis, Ojjaara and anemia
Anybody in this group diagnosed with Myelofibrosis taking Ojjaara and still suffering from anemia? Low red blood cells, platelets are low, hemoglobin low, white blood...
Discussion
Myelofibrosis or long Covid?
I live in Florida. I have Myelofibrosis, which brings anemia, but my current lab results don’t support my symptoms (e.g., fatigued all the time). So,...
Discussion
Myelofibrosis w/ JAK2 mutation
I have recently been diagnosed and want to know people's experiences. Has anyone been through a clinical trial? Taken hydroxyurea? Not done anything? Worked with...
Discussion
Primary Myelofibrosis diagnosis in 40’s
I was shocked to learn my diagnosis because of my age. So many people are diagnosed with PMF in there 60’s. Is there anyone else...
Discussion
Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia
Does anyone on this site have pre-fibrotic pm or know where I can get some good information. I am still a week away from a...
Discussion
Is Myelofibrosis (MF) the same as Myelodyplastic syndrome?
Is Mylofibrosis the same as mylodisplastic syndrome?
Discussion
Doe anyone with Myelofibrosis suffer musscle spasm?
At first I thought they were just cramps or what I call charlie horses. Then I was told they were muscle spasms. They happen at...
Discussion
Anyone want to talk about Myelofibrosis?
Anyone out there wishing to discuss above diagnosis?
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