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Blood Cancers & Disorders Support Group

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Discussion
What are treatments for myelofibrosis?
What are treatments for mylofibrosis! I was just diagnosed with it?
Last active: Sep 4, 2025
Discussion
Myelofibrosis, Ojjaara and anemia
Anybody in this group diagnosed with Myelofibrosis taking Ojjaara and still suffering from anemia? Low red blood cells, platelets are low, hemoglobin low, white blood...
Last active: Nov 23, 2025
Discussion
Are their support groups for Myelofibrosis?
Diagnosed with Myelofibrosis living in California. Would like to find out about group support.
Last active: Nov 8, 2025
Discussion
Myelofibrosis w/ JAK2 mutation
I have recently been diagnosed and want to know people's experiences. Has anyone been through a clinical trial? Taken hydroxyurea? Not done anything? Worked with...
Last active: Nov 11, 2025
Discussion
Primary Myelofibrosis diagnosis in 40’s
I was shocked to learn my diagnosis because of my age. So many people are diagnosed with PMF in there 60’s. Is there anyone else...
Last active: May 14, 2023
Discussion
Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia
Does anyone on this site have pre-fibrotic pm or know where I can get some good information. I am still a week away from a...
Last active: Aug 13, 2025
Discussion
Has anyone had heart issues with myelofibrosis?
I am only 46, just diagnosed with Phase I MF. I am a non smoker with an active lifestyle and relatively healthy diet. We cook...
Last active: Jan 21, 2025
Discussion
Anyone want to talk about Myelofibrosis?
Anyone out there wishing to discuss above diagnosis?
Last active: Jul 19, 2025
Discussion
Does anyone with Myelofibrosis suffer musscle spasm?
At first I thought they were just cramps or what I call charlie horses. Then I was told they were muscle spasms. They happen at...
Last active: Sep 3, 2025