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Blood Cancers & Disorders Support Group

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246 total results
Discussion
Myelofibrosis*
Anyone out there wishing to discuss above diagnosis?
Last active: Jul 7 12:31pm
Discussion
What are treatments for myelofibrosis?
What are treatments for mylofibrosis! I was just diagnosed with it?
Last active: Sep 7 10:50am
Discussion
Myelofibrosis or long Covid?
I live in Florida. I have Myelofibrosis, which brings anemia, but my current lab results don’t support my symptoms (e.g., fatigued all the time). So,...
Last active: Feb 8, 2023
Discussion
Myelofibrosis w/ JAK2 mutation
I have recently been diagnosed and want to know people's experiences. Has anyone been through a clinical trial? Taken hydroxyurea? Not done anything? Worked with...
Last active: Jul 4 10:05am
Discussion
Primary Myelofibrosis diagnosis in 40’s
I was shocked to learn my diagnosis because of my age. So many people are diagnosed with PMF in there 60’s. Is there anyone else...
Last active: May 14, 2023
Discussion
Is Myelofibrosis (MF) the same as Myelodyplastic syndrome?
Is Mylofibrosis the same as mylodisplastic syndrome?
Last active: Jun 10 10:19am
Discussion
Anyone with primary myelofibrosis, low risk, asymptomatic?
Is there anyone here suffer from PMF? Or whose doctor diagnosed him primary myelofibrosis with low risk, no symptoms, my doctor is very hesitant to...
Last active: Apr 6 1:38pm
Discussion
Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia
Does anyone on this site have pre-fibrotic pm or know where I can get some good information. I am still a week away from a...
Last active: Apr 10, 2023
Discussion
Anyone have information about late stages of primary myelofibrosis?
Does anyone have a link to information regarding late stages of PMDS?My diagnosis is primary myelofibrosis. I’m probably two years into this disease without realizing...
Last active: Apr 13 8:22am
Discussion
My mother diagnosed with Myelofibrosis: Episodes of abdominal pain
Hello My mother who is 87 and has some dementia was just diagnosed with Myelofibrosis. She has had episodes where she’s fine and then suddenly...
Last active: Jun 16 11:13am