Support Groups

Blood Cancers & Disorders Support Group

Public Support Group
340 total results
Discussions (12)
Smoldering Multiple Myeloma and symptoms
I have had MGUS since 2021 and now have smoldering multiple myeloma. I am now feeling something new. A symptom. Like a twinging or dull...
Last active: 4 days ago
B-Cell Reduction with Smoldering Myeloma
Medicare will not approve IVIG infusions unless a patient has undergone some type of B-Cell reduction or show the appropriate antibody(ies) response to vaccinations. All...
Last active: Mar 18, 2024
How to know whether smoldering myeloma or multiple myeloma?
Hello, hope you all are doing well!I have a situation with my mom(65 years old). From September my mom was on viral situation. When we...
Last active: Jan 29, 2024
Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait
Interested in connecting with others with the same diagnosis. Looking into dietary changes that could help.I will introduce myself to the group. This will be...
Last active: Aug 12, 2024
I have smoldering Myeloma. Does anyone have this diagnosis?
Multiple Myeloma- I have smoldering Myeloma. Does anyone have this diagnosis? Does anyone have an abnormal protein in their blood , which is a precursor...
Last active: Jan 14 6:47pm
High risk smoldering myeloma protocol after 24 cycles of Revlimid?
I have high risk smoldering multiple myeloma and am on lenalidomide (Revlimid) as sole agent (not clinical trial) which will continue for 24 cycles. I'm...
Last active: Nov 16, 2023
Want to talk about Multiple Myeloma: Anyone else?
Asking anyone who is going thru this experience to share any pro's or con's of this disease. As of now I'm in MGUS, will find...
Last active: May 13 5:06pm
Anyone had Zometa alone or Zometa plus Xgeva?
My heme/onc has prescribed Xgeva plus Zometa treatments for my Smoldering Myeloma next month. Anyone who's been treated with this combination or just with Zometa?...
Last active: Feb 7, 2023
IgM MGUS and newly infected with Covid
Husband was diagnosed in 2019. It has been characterized as smoldering MGUS by his hematologist. This past week he got his first infection with Covid....
Last active: Jul 2, 2024
How high should my Kappa light chain continue to rise before I worry.?
My Kappa light chains continue to rise each time I have my labs run. They are now 90. The ratio rises also. But everything else...
Last active: Apr 13, 2024
MGUS and understanding results
Hi, iv been diagnosed with either MGUS or Smouldering myeloma. I havnt had a biopsy yet but was told I don’t need one yet. How...
Last active: May 6, 2024