Blood Cancers & Disorders Support Group

I have had MGUS since 2021 and now have smoldering multiple myeloma. I am now feeling something new. A symptom. Like a twinging or dull...

Medicare will not approve IVIG infusions unless a patient has undergone some type of B-Cell reduction or show the appropriate antibody(ies) response to vaccinations. All...

Hello, hope you all are doing well!I have a situation with my mom(65 years old). From September my mom was on viral situation. When we...

How scary it is living in a condition that I will have for the rest of my life. Not knowing if it will get worse,...

I wanted to start a discussion specifically on SMM. Asking specific questions about time of diagnosis, like age, m-spike level, protein in urine level and...

Does smoldering multiple myeloma or myeloma cause skin problems

I was diagnosed with low-risk Smoldering Myeloma IGG Lambda in 2023. CBC has stayed within normal range, but M-spike has been slowly rising. My bone...

Hello---looking for any information/experience before my ONC appointment Monday. I'm smoldering WM but just had my labs prior to my appointment on Monday, and in...

Interested in connecting with others with the same diagnosis. Looking into dietary changes that could help.I will introduce myself to the group. This will be...

I have high risk smoldering multiple myeloma and am on lenalidomide (Revlimid) as sole agent (not clinical trial) which will continue for 24 cycles. I'm...

I live in Boise and I am wondering how I know if the hmotologist/oncologist I am seeing really knows about SMM and/or should I get...

Multiple Myeloma- I have smoldering Myeloma. Does anyone have this diagnosis? Does anyone have an abnormal protein in their blood , which is a precursor...

Asking anyone who is going thru this experience to share any pro's or con's of this disease. As of now I'm in MGUS, will find...

My heme/onc has prescribed Xgeva plus Zometa treatments for my Smoldering Myeloma next month. Anyone who's been treated with this combination or just with Zometa?...

Husband was diagnosed in 2019. It has been characterized as smoldering MGUS by his hematologist. This past week he got his first infection with Covid....

My Kappa light chains continue to rise each time I have my labs run. They are now 90. The ratio rises also. But everything else...

There are new studies being conducted at Dana Farber Institute for early detection and treatment of MGUS, SMM, and MM. Has anyone looked into this...

I have IgA Kappa Light Chain SMM, and a friend has leukemia. She isn't on meds so likely early, but could use more info and...

Hi, iv been diagnosed with either MGUS or Smouldering myeloma. I havnt had a biopsy yet but was told I don’t need one yet. How...