Blood Cancers & Disorders Support Group

Having had high platelets since 2017 and doctors could not find a cause I paid to see a haematologist and I was diagnosed with ET...

I just got diagnosed today with ET. My platelets have been high for years and 6 years ago I learned I have a Jak2 mutation....

Is there any one place or Website that lists the full known (or experienced) symptoms of ET? How about a complete listing of possible medications...

Has anyone had swollen in the back of their leg? I’m in the middle of a diagnosis. Just left the hematology office today. Had to...

I’m 83 and in pretty good health. I first noticed my blood platelets were around 450 about 3. years ago. Doctor said nothing serious. Over...

I am 74, diagnosed 3 years ago. Only on one baby aspiring daily. But, my itching burning skin is getting almost unbearable on some days....

I am so thankful I found this group! I was diagnosed with Essential Thrombocytosis about 3 years ago. At first I was taking 500mg of...

Hi - I am about to get a bone marrow biopsy because my platelets are 965. I understand that I am likely to start hydroxyurea...

Two years ago I suffered a stress fracture of the tibia plateau while riding my bike through sand, since then I have 4 other stress...

My doctor is suggesting I try Interferon instead of HU. I have Essential thrombocytosis Cal-R and have been on HU 1,000 M-F and 500 S...

I have essential thrombocytosis with CALR exon 9 mutation, no JAK2. I've been taking 500 mg hydroxyurea every other day for 2 1/2 years. About...

I have been taking HU (1000mg per day) for one year for essential Thrombocytosis . I have experienced little side effects and my platelet count...

Have JAK2 mutation verified twice; one year apart and from different labs. As I understand, it may cause polycythemia vera, essential thrombocytosis, or leukemia. My...

I’m so confused..googling way to much and having so much anxiety.. I was referred to oncologist with a high platelet count. I’m 61 and never...

I was recently diagnosed with Essential Thrombocythemia, a rare incurable blood cancer. Platelet count aside, I am asymptotic. This current condition morphed from (constitutional) thrombcytosis,...