Blood Cancers & Disorders Support Group

Diagnosed with Myelofibrosis living in California. Would like to find out about group support.

What are treatments for mylofibrosis! I was just diagnosed with it?

Anybody in this group diagnosed with Myelofibrosis taking Ojjaara and still suffering from anemia? Low red blood cells, platelets are low, hemoglobin low, white blood...

I have recently been diagnosed and want to know people's experiences. Has anyone been through a clinical trial? Taken hydroxyurea? Not done anything? Worked with...

I live in Florida. I have Myelofibrosis, which brings anemia, but my current lab results don’t support my symptoms (e.g., fatigued all the time). So,...

I was shocked to learn my diagnosis because of my age. So many people are diagnosed with PMF in there 60’s. Is there anyone else...

Is Mylofibrosis the same as mylodisplastic syndrome?

Does anyone on this site have pre-fibrotic pm or know where I can get some good information. I am still a week away from a...

At first I thought they were just cramps or what I call charlie horses. Then I was told they were muscle spasms. They happen at...

I am only 46, just diagnosed with Phase I MF. I am a non smoker with an active lifestyle and relatively healthy diet. We cook...

My husband has myelofibrosis. He has low platelets and has had 72 platelet infusions since the first of February. His cancer doctor started him on...

Anyone out there wishing to discuss above diagnosis?

Is there anyone here suffer from PMF? Or whose doctor diagnosed him primary myelofibrosis with low risk, no symptoms, my doctor is very hesitant to...

I'm looking for folks that have experience with Ruxolitinib and Acyclovir for treatment of PV that is progressing to Myelofibrosis. What can I do to...

Hello My mother who is 87 and has some dementia was just diagnosed with Myelofibrosis. She has had episodes where she’s fine and then suddenly...

Does anyone have PMF? I was diagnosed in July and still need to learn more about what is best for me. I'm a 67 yo...

I was wondering if anyone can share their experience with Ojjaara treatment. I started having anemia, high platelets, and high white count two years ago....

Does anyone have a link to information regarding late stages of PMDS?My diagnosis is primary myelofibrosis. I’m probably two years into this disease without realizing...

Australian-made cancer drug gets billion-dollar US FDA approval https://www.smh.com.au/national/australian-made-cancer-drug-gets-billion-dollar-us-fda-approval-20230918-p5e5gp.html

Has anyone experienced severe foot nerve pain with myelofibrosis? I have post ET MF and medication has not changes since transformation to ET 5 years...