Blood Cancers & Disorders Support Group

Hello, I'm 58 and just diagnosed with MF and absolutely terrified. Just acknowledging the "c" word terrifies me. I have few symptoms except for light...

Evening to fellow Mayo Connect My visit with my provider showed continued increase in spleen size. I’m in a clinical trial that has resolved my...

Anybody in this group diagnosed with Myelofibrosis taking Ojjaara and still suffering from anemia? Low red blood cells, platelets are low, hemoglobin low, white blood...

What are treatments for mylofibrosis! I was just diagnosed with it?

Diagnosed with Myelofibrosis living in California. Would like to find out about group support.

I have recently been diagnosed and want to know people's experiences. Has anyone been through a clinical trial? Taken hydroxyurea? Not done anything? Worked with...

I was shocked to learn my diagnosis because of my age. So many people are diagnosed with PMF in there 60’s. Is there anyone else...

Anyone out there wishing to discuss above diagnosis?

Anyone else have Myelofibrosis (CMS-HCC)? Was diagnosed with it beginning of Dec 2025.Currently taking Jakafi to slow progress, of course not a cure but it...

Is Mylofibrosis the same as mylodisplastic syndrome?

Does anyone on this site have pre-fibrotic pm or know where I can get some good information. I am still a week away from a...

I was diagnosed with myelofibrosis two years ago and started Hydrea 250 mg daily with no adverse results.Now Waldenstroms lymphoma has been added to the...

I am only 46, just diagnosed with Phase I MF. I am a non smoker with an active lifestyle and relatively healthy diet. We cook...

At first I thought they were just cramps or what I call charlie horses. Then I was told they were muscle spasms. They happen at...

My husband has myelofibrosis. He has low platelets and has had 72 platelet infusions since the first of February. His cancer doctor started him on...

I'm looking for folks that have experience with Ruxolitinib and Acyclovir for treatment of PV that is progressing to Myelofibrosis. What can I do to...

Is there anyone here suffer from PMF? Or whose doctor diagnosed him primary myelofibrosis with low risk, no symptoms, my doctor is very hesitant to...

I was finally diagnosed with autoimmune myelofibrosis by the Mayo Clinic, which is a truly amazing place to get diagnosis and treatment. Doctors in my...

Hello everyone. I'm am numb from overthinking everything. I was diagnosed with PMF in2022. doctors didn't think I was gonna make it. now fast forward...

Hello My mother who is 87 and has some dementia was just diagnosed with Myelofibrosis. She has had episodes where she’s fine and then suddenly...