Blood Cancers & Disorders Support Group

Anyone out there wishing to discuss above diagnosis?

What are treatments for mylofibrosis! I was just diagnosed with it?

I live in Florida. I have Myelofibrosis, which brings anemia, but my current lab results don’t support my symptoms (e.g., fatigued all the time). So,...

I have recently been diagnosed and want to know people's experiences. Has anyone been through a clinical trial? Taken hydroxyurea? Not done anything? Worked with...

I was shocked to learn my diagnosis because of my age. So many people are diagnosed with PMF in there 60’s. Is there anyone else...

Is Mylofibrosis the same as mylodisplastic syndrome?

Is there anyone here suffer from PMF? Or whose doctor diagnosed him primary myelofibrosis with low risk, no symptoms, my doctor is very hesitant to...

Does anyone on this site have pre-fibrotic pm or know where I can get some good information. I am still a week away from a...

Does anyone have a link to information regarding late stages of PMDS?My diagnosis is primary myelofibrosis. I’m probably two years into this disease without realizing...

Hello My mother who is 87 and has some dementia was just diagnosed with Myelofibrosis. She has had episodes where she’s fine and then suddenly...

I was wondering if anyone can share their experience with Ojjaara treatment. I started having anemia, high platelets, and high white count two years ago....

Does anyone have PMF? I was diagnosed in July and still need to learn more about what is best for me. I'm a 67 yo...

Australian-made cancer drug gets billion-dollar US FDA approval https://www.smh.com.au/national/australian-made-cancer-drug-gets-billion-dollar-us-fda-approval-20230918-p5e5gp.html

Myelofibrosis. Jakafi Hydrea Enrebic not the answer. Then what is. I am looking for years allready. not using any medicine at this stage

Bone marrow consistent with a myeloproliferative neoplasm and the differential includes essential thrombocythemia and primary myelofibrosis. MPL mutation testing is positive. No sustainable iron in...

I have a very enlarged spleen from myelofibrosis. Diagnosed in early 2011, I have taken no medication, only specific supplements. Until recently, my Consultant said...

My mum has had essential thrombocythamia which has now progressed to myelofibrosis. Following a period where she's been very ill she has had the most...

Feb 9, first phlebolotomy (iron is low) Polycythemia Vera and Myelofibrosis - any helpful tips. I have problem with dehydration, (as teenager, I was hospitalized...

Hi, I was diagnosis with post essential thrombocythemia myelofibrosis 5 weeks ago. I am classified as low risk, with my age of 62 being the...

I have Myelofibrosis diagnosed 8 years ago, and have been diabetic for many years since chemo and radiation for breast cancer. I also have kidney...