Blood Cancers & Disorders Support Group

What are treatments for mylofibrosis! I was just diagnosed with it?

Anybody in this group diagnosed with Myelofibrosis taking Ojjaara and still suffering from anemia? Low red blood cells, platelets are low, hemoglobin low, white blood...

Diagnosed with Myelofibrosis living in California. Would like to find out about group support.

I have recently been diagnosed and want to know people's experiences. Has anyone been through a clinical trial? Taken hydroxyurea? Not done anything? Worked with...

I was shocked to learn my diagnosis because of my age. So many people are diagnosed with PMF in there 60’s. Is there anyone else...

Anyone else have Myelofibrosis (CMS-HCC)? Was diagnosed with it beginning of Dec 2025.Currently taking Jakafi to slow progress, of course not a cure but it...

Does anyone on this site have pre-fibrotic pm or know where I can get some good information. I am still a week away from a...

I was diagnosed with myelofibrosis two years ago and started Hydrea 250 mg daily with no adverse results.Now Waldenstroms lymphoma has been added to the...

Is Mylofibrosis the same as mylodisplastic syndrome?

Anyone out there wishing to discuss above diagnosis?

I was finally diagnosed with autoimmune myelofibrosis by the Mayo Clinic, which is a truly amazing place to get diagnosis and treatment. Doctors in my...

At first I thought they were just cramps or what I call charlie horses. Then I was told they were muscle spasms. They happen at...

I am only 46, just diagnosed with Phase I MF. I am a non smoker with an active lifestyle and relatively healthy diet. We cook...

My husband has myelofibrosis. He has low platelets and has had 72 platelet infusions since the first of February. His cancer doctor started him on...

I'm looking for folks that have experience with Ruxolitinib and Acyclovir for treatment of PV that is progressing to Myelofibrosis. What can I do to...

Is there anyone here suffer from PMF? Or whose doctor diagnosed him primary myelofibrosis with low risk, no symptoms, my doctor is very hesitant to...

Hello My mother who is 87 and has some dementia was just diagnosed with Myelofibrosis. She has had episodes where she’s fine and then suddenly...

I was wondering if anyone can share their experience with Ojjaara treatment. I started having anemia, high platelets, and high white count two years ago....

Does anyone have PMF? I was diagnosed in July and still need to learn more about what is best for me. I'm a 67 yo...

I was recently diagnosed at 76 years old. I have no symptoms at this time, however google tells me my prognosis is 3 to 5...