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Blood Cancers & Disorders Support Group

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354 total results
Discussions (19)
PV Itching Not After Bathing
There’s so much information out there about PV itching following contact with water. My question is simple—can the PV-related itching happen at other times of...
Last active: Oct 12, 2023
PV: terrible itching after shower or bath
I have PV and get terrible itching for about 20- minutes after a shower or bath. A 30-minute bath solves the problem. I hope it...
Last active: Oct 11, 2023
Hodgkin's lymphoma and itching and other side effects
I am inquiring about a family member who was recently diagnosed with classical hodgkins lymphoma. One of her first symptoms was itching along with several...
Last active: Jun 10, 2020
Has anyone else experienced frequent infections and itching with CLL?
I had a respitory infection and took prednisone and Bactrim and started To feel better. Then every time I start feeling better and go out...
Last active: Nov 12, 2023
MDS-CMML-1: Anyone dealing with pruritus (itching)?
I have been diagnosed with MDS-CMML-1 and am experiencing bad Pruritus (itching) in the mornings/evenings and after I shower. Does anyone have the same symptoms...
Last active: Mar 26, 2024
Essential Thrombocytosis - what's your experience with Jakifi?
I am 74, diagnosed 3 years ago. Only on one baby aspiring daily. But, my itching burning skin is getting almost unbearable on some days....
Last active: Mar 16, 2023
Essential thrombocythemia (ET) and breaking out in hives: What helps?
I was diagnosed with ET 2 1/2 years ago. I am on 500mg of Hydroxyuria a day and 1/2 a baby aspirin, and that keeps...
Last active: Feb 28, 2023
Acquired Von Willebrand syndrome
I was recently diagnosed with Acquired Von Willebrand syndrome. I went to the hematologist initially because I was seriously concerned about massive bruising I was...
Last active: Nov 26, 2024
How much of a risk factor is high white blood cell count with pv?
I have been on hydroxyurea for 6 weeks. I feel OK and the itching is tolerable. My hematocrit and platelet count are normal, but my...
Last active: Aug 18, 2024
Free light chain ratio in MGUS
Hi, Iam in the U.K. and was diagnosed with IGM Lambda MGUS 15 months ago. During that time my Lambda flc has risen from 27.5...
Last active: Sep 25, 2024
Anyone have information about late stages of primary myelofibrosis?
Does anyone have a link to information regarding late stages of PMDS?My diagnosis is primary myelofibrosis. I’m probably two years into this disease without realizing...
Last active: Apr 13, 2024
Is Cutaneous T-Cell Lymphoma a Death Sentence?
Hi, I’m 61 years old. Not 100% diagnosed yet. They still have to do a genetic organization test. But biopsy came back with elevated white...
Last active: Dec 8, 2024
Can CLL change to SLL? Then what?
In 2010 I was diagnosed with CLL. since then I have been getting regular IVIG infusions. In the past year some lymph glands under my...
Last active: Aug 18, 2024
High Eosinophils with pain in left side under ribs and very itchy
Hi, my name is Gina and I am new to this site. I have been suffering for four years with very high heels on and...
Last active: Nov 29, 2024
Odd symptoms
My symptoms come and go and have been for a couple years now. My blood work appears normal. Has anyone had symptoms similar? All over...
Last active: Feb 5, 2024
Ive been to passive with my dr's I believe.
Hello all and Happy Holidays! I could use some input. I have been to so many dr’s trying to find out why I’ve been feeling...
Last active: Dec 18, 2019
Blood Cancer - JAK2 - Autoimmune- Confusion
This is incredibly long...please forgive me for it. I'm just feeling very lost. I am 39, female. Since at least 2016, I have had confusing...
Last active: Apr 3, 2023