505 total results
Discussions (28)
Severe itching with PV
After 2 years of very little itching on baby aspirin, I was, for a variety of reasons, switched to Eliquis. I now have mild itching...
Terrible itching after shower
I have polycythemia and had terrible itching and hives after a shower or a swim in fresh water. I solved this problem by taking long...
PV Itching Not After Bathing
There’s so much information out there about PV itching following contact with water. My question is simple—can the PV-related itching happen at other times of...
ET Jak2 mutation itching
I was diagnosed with ET with Jak2 mutation about eight months ago and I am on hydroxyurea. Some days I am so itchy I feel...
Myelodysplastic syndrome (MDS) and skin itching
what can be done for extreme itching from myelodysplasia
PV: terrible itching after shower or bath
I have PV and get terrible itching for about 20- minutes after a shower or bath. A 30-minute bath solves the problem. I hope it...
Hodgkin's lymphoma and itching and other side effects
I am inquiring about a family member who was recently diagnosed with classical hodgkins lymphoma. One of her first symptoms was itching along with several...
MDS-CMML-1: Anyone dealing with pruritus (itching)?
I have been diagnosed with MDS-CMML-1 and am experiencing bad Pruritus (itching) in the mornings/evenings and after I shower. Does anyone have the same symptoms...
Has anyone else experienced frequent infections and itching with CLL?
I had a respitory infection and took prednisone and Bactrim and started To feel better. Then every time I start feeling better and go out...
Essential Thrombocytosis - what's your experience with Jakifi?
I am 74, diagnosed 3 years ago. Only on one baby aspiring daily. But, my itching burning skin is getting almost unbearable on some days....
polycythemia Vera
Can any tell me if sore finger tips plus elevated hgb, hct, hx DVT, severe itching, with a warm shower would need a workup for...
Essential thrombocythemia (ET) and breaking out in hives: What helps?
I was diagnosed with ET 2 1/2 years ago. I am on 500mg of Hydroxyuria a day and 1/2 a baby aspirin, and that keeps...
Developed Rash on Hydroxyurea (HU)
I am 72 years old and have ET with JAK2 mutation. I am on HU 500 mg twice a day. I have recently developed a...
Acquired Von Willebrand syndrome
I was recently diagnosed with Acquired Von Willebrand syndrome. I went to the hematologist initially because I was seriously concerned about massive bruising I was...
How much of a risk factor is high white blood cell count with pv?
I have been on hydroxyurea for 6 weeks. I feel OK and the itching is tolerable. My hematocrit and platelet count are normal, but my...
Is Cutaneous T-Cell Lymphoma a Death Sentence?
Hi, I’m 61 years old. Not 100% diagnosed yet. They still have to do a genetic organization test. But biopsy came back with elevated white...
Anyone else have EXTREME brain fog with dasatinib or imatinib?
https://connect.mayoclinic.org/discussion/anyone-else-have-extreme-brain-fog-with-dasatinibimatinib/
My husband was just diagnosed in December with CML. He has also had Polycythemia Vera for 25 years, managed well with medication, most recently Jakafi...
Free light chain ratio in MGUS
Hi, Iam in the U.K. and was diagnosed with IGM Lambda MGUS 15 months ago. During that time my Lambda flc has risen from 27.5...
Anyone have information about late stages of primary myelofibrosis?
Does anyone have a link to information regarding late stages of PMDS?My diagnosis is primary myelofibrosis. I’m probably two years into this disease without realizing...
Can CLL change to SLL? Then what?
In 2010 I was diagnosed with CLL. since then I have been getting regular IVIG infusions. In the past year some lymph glands under my...
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