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Discussions (25)
Severe itching with PV
After 2 years of very little itching on baby aspirin, I was, for a variety of reasons, switched to Eliquis. I now have mild itching...
Last active: 6 hours ago
PV Itching Not After Bathing
There’s so much information out there about PV itching following contact with water. My question is simple—can the PV-related itching happen at other times of...
Last active: 6 days ago
PV: terrible itching after shower or bath
I have PV and get terrible itching for about 20- minutes after a shower or bath. A 30-minute bath solves the problem. I hope it...
Last active: Oct 11, 2023
ET Jak2 mutation itching
I was diagnosed with ET with Jak2 mutation about eight months ago and I am on hydroxyurea. Some days I am so itchy I feel...
Last active: Mar 17 12:39pm
Hodgkin's lymphoma and itching and other side effects
I am inquiring about a family member who was recently diagnosed with classical hodgkins lymphoma. One of her first symptoms was itching along with several...
Last active: Jun 10, 2020
Has anyone else experienced frequent infections and itching with CLL?
I had a respitory infection and took prednisone and Bactrim and started To feel better. Then every time I start feeling better and go out...
Last active: Nov 12, 2023
MDS-CMML-1: Anyone dealing with pruritus (itching)?
I have been diagnosed with MDS-CMML-1 and am experiencing bad Pruritus (itching) in the mornings/evenings and after I shower. Does anyone have the same symptoms...
Last active: May 15 6:29pm
Essential Thrombocytosis - what's your experience with Jakifi?
I am 74, diagnosed 3 years ago. Only on one baby aspiring daily. But, my itching burning skin is getting almost unbearable on some days....
Last active: Mar 16, 2023
polycythemia Vera
Can any tell me if sore finger tips plus elevated hgb, hct, hx DVT, severe itching, with a warm shower would need a workup for...
Last active: Aug 13 1:28pm
Essential thrombocythemia (ET) and breaking out in hives: What helps?
I was diagnosed with ET 2 1/2 years ago. I am on 500mg of Hydroxyuria a day and 1/2 a baby aspirin, and that keeps...
Last active: Feb 28, 2023
Developed Rash on Hydroxyurea (HU)
I am 72 years old and have ET with JAK2 mutation. I am on HU 500 mg twice a day. I have recently developed a...
Last active: Jul 18 6:06pm
Acquired Von Willebrand syndrome
I was recently diagnosed with Acquired Von Willebrand syndrome. I went to the hematologist initially because I was seriously concerned about massive bruising I was...
Last active: Nov 26, 2024
How much of a risk factor is high white blood cell count with pv?
I have been on hydroxyurea for 6 weeks. I feel OK and the itching is tolerable. My hematocrit and platelet count are normal, but my...
Last active: Aug 18, 2024
Anyone else have EXTREME brain fog with dasatinib or imatinib?
My husband was just diagnosed in December with CML. He has also had Polycythemia Vera for 25 years, managed well with medication, most recently Jakafi...
Last active: Jul 15 1:48pm
Free light chain ratio in MGUS
Hi, Iam in the U.K. and was diagnosed with IGM Lambda MGUS 15 months ago. During that time my Lambda flc has risen from 27.5...
Last active: Sep 25, 2024
open-minded approach to investigate underrecognized or rare causes
I am a patient urgently seeking answers and support for a complex, unresolved medical picture since 2017. My history includes avascular necrosis (requiring multiple orthopedic...
Last active: Jun 26 6:12pm
Anyone have information about late stages of primary myelofibrosis?
Does anyone have a link to information regarding late stages of PMDS?My diagnosis is primary myelofibrosis. I’m probably two years into this disease without realizing...
Last active: Apr 13, 2024
Can CLL change to SLL? Then what?
In 2010 I was diagnosed with CLL. since then I have been getting regular IVIG infusions. In the past year some lymph glands under my...
Last active: Aug 18, 2024