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Discussions (14)
Leukemia CMML-2
I was just diagnosed with CMML-2 with my Blast count at 15%...Looking for any advise or experience out there...I am about to start chemo with...
Last active: Nov 15, 2018
CMML vs CMUS
Pre-CMML Hello Everyone, I was recently diagnosed as "on the verge between Clonal Monocytosis of Undetermined Significance and Full-blown CMML. My next generation sequencing NGS...
Last active: Sep 11 8:40am
Adult Langerhans cell Histiocytosis and CMML
I was diagnosed with Langerhans cell Histiocytosis in May of 2016 after a biopsy of skin lesions. I had never heard of this rare disease...
Last active: Apr 7 9:04pm
Bone marrow transplants for CMML
My son at 39 was just diagnosed with CMML and will be coming to Mayo for 4 months to prepare for and receive it. His...
Last active: Mar 13, 2024
Looking for recommendations of doctors with expertise in CMML
Any recommendations for physicians with CMML expertise and experience to a provide second opinion regarding prognosis and treatment?
Last active: Jul 3, 2024
Anybody with cmml-2 using TCM, integrated therapy
Having a hard time newly diagnosed cmml-2, really few symptoms, just started AZA chemo, planning on bone marrow transplant. I want to have a say...
Last active: Oct 9, 2025
MDS-CMML-1: Anyone dealing with pruritus (itching)?
I have been diagnosed with MDS-CMML-1 and am experiencing bad Pruritus (itching) in the mornings/evenings and after I shower. Does anyone have the same symptoms...
Last active: Mar 17 8:42am
They say I have CMML but bone marrow not there: What to do?
First they were treating me for Cmml . But the treatment was to strong they said because my numbers drop. They Took me off of...
Last active: Dec 20, 2025
Diagnosed with CMML. On HU for past 6 months. Considering BESREMi.
I’m a 68 year old female who was treated for breast cancer ~30 years ago. Was diagnosed in Feb. with CMML and JAK2 V617F &...
Last active: 7 hours ago
I would deeply appreciate feedback on patients diagnosed with CMML
Dear friends in the group, I would deeply appreciate receiving some feedback on patients diagnosed with CMML.Thanks
Last active: Aug 12, 2025
What should doctor look for when testing my blood to be CMML donor?
My brother is being treated for CMML at the Mayo Clinic in Jacksonville, FL I want to get qualified as a stem cell donor to...
Last active: Jan 8, 2024
What treatment options for CMML2 with no detected mutations ?
HelloWhat are all the treatment options for a 78-year old patient with CMML2, with no detected mutations? (BMT is not an option due to age)....
Last active: Dec 8, 2024
Side effects of Vidaza injections
My mom who is 85 was diagnosed with MDS in 2019. Started with anemia and now progressed to CMML 2. We started 5 days of...
Last active: Aug 23, 2025
Waiting for Donor confirmation, for BMT
Hello. Diagnosed CMML-1 July 2025, Myelofobrosis 3+/3 in January. It was determined in January that I need an Allo BMT as soon as possible. This...
Last active: Apr 25 10:41am