129 total results
Discussions (14)
Leukemia CMML-2
I was just diagnosed with CMML-2 with my Blast count at 15%...Looking for any advise or experience out there...I am about to start chemo with...
CMML vs CMUS
Pre-CMML Hello Everyone, I was recently diagnosed as "on the verge between Clonal Monocytosis of Undetermined Significance and Full-blown CMML. My next generation sequencing NGS...
Adult Langerhans cell Histiocytosis and CMML
I was diagnosed with Langerhans cell Histiocytosis in May of 2016 after a biopsy of skin lesions. I had never heard of this rare disease...
Bone marrow transplants for CMML
My son at 39 was just diagnosed with CMML and will be coming to Mayo for 4 months to prepare for and receive it. His...
Looking for recommendations of doctors with expertise in CMML
Any recommendations for physicians with CMML expertise and experience to a provide second opinion regarding prognosis and treatment?
Anybody with cmml-2 using TCM, integrated therapy
Having a hard time newly diagnosed cmml-2, really few symptoms, just started AZA chemo, planning on bone marrow transplant. I want to have a say...
MDS-CMML-1: Anyone dealing with pruritus (itching)?
I have been diagnosed with MDS-CMML-1 and am experiencing bad Pruritus (itching) in the mornings/evenings and after I shower. Does anyone have the same symptoms...
They say I have CMML but bone marrow not there: What to do?
First they were treating me for Cmml . But the treatment was to strong they said because my numbers drop. They Took me off of...
Diagnosed with CMML. On HU for past 6 months. Considering BESREMi.
I’m a 68 year old female who was treated for breast cancer ~30 years ago. Was diagnosed in Feb. with CMML and JAK2 V617F &...
I would deeply appreciate feedback on patients diagnosed with CMML
Dear friends in the group, I would deeply appreciate receiving some feedback on patients diagnosed with CMML.Thanks
What should doctor look for when testing my blood to be CMML donor?
My brother is being treated for CMML at the Mayo Clinic in Jacksonville, FL I want to get qualified as a stem cell donor to...
What treatment options for CMML2 with no detected mutations ?
HelloWhat are all the treatment options for a 78-year old patient with CMML2, with no detected mutations? (BMT is not an option due to age)....
Side effects of Vidaza injections
My mom who is 85 was diagnosed with MDS in 2019. Started with anemia and now progressed to CMML 2. We started 5 days of...
Waiting for Donor confirmation, for BMT
Hello. Diagnosed CMML-1 July 2025, Myelofobrosis 3+/3 in January. It was determined in January that I need an Allo BMT as soon as possible. This...
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