Blood Cancers & Disorders Support Group

Hi my wife's routine blood test came back with high platelet count a few times in the past few years, every time the doctor would...

I was diagnosed with ET (MPL gene mutation) in June of 2023, and have been on Hydroxyurea since then. I have varied from 500 mg...

Hi, I am wondering how each person received their diagnosis of ET or other MPN. How many of you had a bone marrow biopsy to...

Has anyone had a DNA marker test to see when the JAK2 might have appeared? I'm curious about what the "when" and "what" environmental factors...

I have recently been diagnosed with ET after having a stroke one year ago and only 49 years old. I have been on Hydrea for...

I am 72 years old and have ET with JAK2 mutation. I am on HU 500 mg twice a day. I have recently developed a...

Hello all. I recently had some blood work and it was confirmed that my platelets were up from 300, 485, 519 to now 689. My...

Hello all,I Just wanted to share with you that I have been on hydrea 500mg daily for about a weak already, no symptoms from Hydrea...

Im 64 and have been diagnosed with ET since 2022. My platelets are now at 768,000. I Will be starting hydroxyurea 1 per every other...

I am 79 with a one year diagnosis of ET JAK2. My platelets were slowly rising for several years before diagnosis and my kidney function...

I’ve had ET caused by Jake 2 gene mutation for 10 years and have been taking standard dose hydra 500mg a day. I’m now 71...

Unfortunately, my ET diagnosis comes right at the time when I start Medicare, and I now have just a week to make my choice for...

Can anyone tell me what this actually means? I have not seen anyone with this as yet. I have had ET for over 17 years...

I just got diagnosed today with ET. My platelets have been high for years and 6 years ago I learned I have a Jak2 mutation....

Is there any one place or Website that lists the full known (or experienced) symptoms of ET? How about a complete listing of possible medications...

My husband was diagnosed June 2019, he had been hospitalized in 2017 and went into septic shock only to realize he had a hole in...

I am interested in connecting with others with this illness. I was diagnosed this summer with ET and have been to see two hematologists here...

I’m so confused..googling way to much and having so much anxiety.. I was referred to oncologist with a high platelet count. I’m 61 and never...

My 76-year-old mother (ET, JAK2+) has been on Hydroxyurea (500mg, 3x weekly) for 7 months without prior GI issues. Recently, after resuming this dose following...

My wife, Pam is recently diagnosed with ET. Three weeks ago she was out on a fairly high dose of HU(2000 mg/day) because her platelet...