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Public Support Group 999 total results
Discussions (95)
Lymphoma cells in mesenteric lymph node
Hello, I had an endoscopy with ultrasound a few weeks ago. An enlarged node was seen in a June CT scan. I have lost 42...
Does MGUS cause red blood cells (RBCs) to drop?
I was diagnosed in June with Mgus. I am so fatigued and weak. RBCs dropped to below normal. Dr. blows me off-“eat red meat and...
Lenolidamide and Ixazomib
Lenolidamide [known also as Revlimid] and Ixazomib [known also as Ninlaro. I have been on lenolidamide plus dexamethasone for over 3 years. We are now...
Why doesn't a Mayo Wellness Checkup Include a Blood Test?
Yesterday when I phoned a longtime friend regarding his prostrate cancer, he told me it was diagnosed by the blood test at his Marshfield Health...
Am I alone with so many maladies?
20 some odd years ago I was diagnosed with Diffused large-cell lymphoma and through the strength and support of my family and friends (and amazing...
Polycythemia causing high output cardiac failure
My spouse has polycythemia Vera, dx about 6 years ago. She did well on hydrea 500mg daily until about 3 months ago. Her platelets began...
Has anyone told they went into remission without treatment?
I was diagnosed with MF in March. I had been seeing an oncologist for 15 months for Multiple Myeoloma, which hasn't been diagnosed yet. In...
In regard to lab results
Hi! I’m new here. I just want to get some insight on my lab results. I went to my hematologist to get some lab work...
How high should my Kappa light chain continue to rise before I worry.?
My Kappa light chains continue to rise each time I have my labs run. They are now 90. The ratio rises also. But everything else...
Starting MGUS journey: It feels like the "in limbo" disease
Hi all, I am very new my first post. My journey started going for regular coughs and uti’s. I was exhausted. GP phoned said all...
My Autologous Stem Cell Transplant Journey - Mayo, Phoenix
First of all I have to give a huge shout out to my whole stem cell team. I can’t think them enough for making such...
Que nuevas terapias se aplican actualmente? New therapies for myeloma?
me diagnosticaron mieloma múltiple en enero de 2015 y hasta ahora me trataron con infusiones y vía oral (bortezomib, etc.) actualmente lenalidomida y en el...
Anybody else have blackout memory issues?
I'm on a drug called pomalyst. I have Multiple MyelomaI was given 4 years when I first found out I had it. I got chemo...
Acyclovir: Have You Been On It and How Long?
When I began my treatments (just two shots) in February of 2022, I was prescribed Acyclivir and Bactrim. Consultation with specialist from Mayo Rochester resulted...
Older than most in the MM group. 79 yrs and recently diagnosed.
Hi. I am a 79 year old who has been recently been diagnosed with Multiple Myleloma -symptom was extreme anemia. I am not in any...
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