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Discussions (102)
Is There A Link Between Sedentary Lifestyle and MGUS/SMM/MM?
I understand that there has been at least one study suggesting that females who remain seated much of the day most days over the long...
Anyone with myeloma experience a change in their sense of smell?
Hi,I have just been diagnosed with Multiple Myeloma but have not started any treatment yet.The timing isn't great with Ucare going away, just adds to...
Low anion gap, worried
Not sure where else to post this. I had blood work done and the anion gap came back low at 3. Everything else in the...
Looking for a good dentist who knows about MM in Cleveland Ohio!
Hi I have Multiple Myeloma and need to find a dentist familiar with MM. I'm on the west side of Cleveland Ohio. I was told...
Cryoglobulinemia Vasculitis Question
I've been diagnosed with Cryo Vasc..(for short). Along with Sjogrens and Reynauds, both oc which are laying low right now..im on Methotrexate and tapering off...
Kappa/lambda results normal but ratio high
My kappa/lambda results were normal but the ratio was high. I have had several issues for over a year now and no one can tell...
Lymphoma cells in mesenteric lymph node
Hello, I had an endoscopy with ultrasound a few weeks ago. An enlarged node was seen in a June CT scan. I have lost 42...
Does MGUS cause red blood cells (RBCs) to drop?
I was diagnosed in June with Mgus. I am so fatigued and weak. RBCs dropped to below normal. Dr. blows me off-“eat red meat and...
Lenolidamide and Ixazomib
Lenolidamide [known also as Revlimid] and Ixazomib [known also as Ninlaro. I have been on lenolidamide plus dexamethasone for over 3 years. We are now...
Why doesn't a Mayo Wellness Checkup Include a Blood Test?
Yesterday when I phoned a longtime friend regarding his prostrate cancer, he told me it was diagnosed by the blood test at his Marshfield Health...
Am I alone with so many maladies?
20 some odd years ago I was diagnosed with Diffused large-cell lymphoma and through the strength and support of my family and friends (and amazing...
Polycythemia causing high output cardiac failure
My spouse has polycythemia Vera, dx about 6 years ago. She did well on hydrea 500mg daily until about 3 months ago. Her platelets began...
Has anyone told they went into remission without treatment?
I was diagnosed with MF in March. I had been seeing an oncologist for 15 months for Multiple Myeoloma, which hasn't been diagnosed yet. In...
How high should my Kappa light chain continue to rise before I worry.?
My Kappa light chains continue to rise each time I have my labs run. They are now 90. The ratio rises also. But everything else...
In regard to lab results
Hi! I’m new here. I just want to get some insight on my lab results. I went to my hematologist to get some lab work...
Starting MGUS journey: It feels like the "in limbo" disease
Hi all, I am very new my first post. My journey started going for regular coughs and uti’s. I was exhausted. GP phoned said all...
My Autologous Stem Cell Transplant Journey - Mayo, Phoenix
First of all I have to give a huge shout out to my whole stem cell team. I can’t think them enough for making such...
Que nuevas terapias se aplican actualmente? New therapies for myeloma?
me diagnosticaron mieloma múltiple en enero de 2015 y hasta ahora me trataron con infusiones y vía oral (bortezomib, etc.) actualmente lenalidomida y en el...
Friend diagnosed with myeloma: Tips on how to support her emotionally?
For those who have Multiple Myeloma:A dear friend was just diagnosed. While it is clear her Drs. are treating her physically, what is the best...
Anybody else have blackout memory issues?
I'm on a drug called pomalyst. I have Multiple MyelomaI was given 4 years when I first found out I had it. I got chemo...
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