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Discussions (117)
Does anyone have any info on MGUS treatment or risk of progression?
Hi all, I'm Nick, I'm 37 from the UK. I've just been diagnosed with MGUS. My M-spike is 1.3g d/l and everything else is normal....
Last active: Jul 29 3:37pm
Have MGUS and just caught Covid: Did Covid affect your numbers?
I was just diagnosed with Covid and was diagnosed with MGUS about a year ago. I am wondering if anyone has had Covid with MGUS...
Last active: Oct 17 11:50am
Anyone been denied life insurance based on your MGUS dx?
My life insurance is about to time out. I’d like to get a policy to help tidy up things if I die the next 10...
Last active: Jul 21 1:59pm
Anyone else been diagnosed with CVID and MGUS and have multiple cancer
I had squamous cell carcinoma of the cervix and had surgery that removed everything except my right ovary. Then had Igg. After remission though I...
Last active: Feb 15, 2024
Any concerns if you have MGUS and need joint replacement surgery?
I have read that joint replacements can raise risk of MM. Has anyone with MGUS had any issues with the surgery?
Last active: Apr 28 3:34pm
Polycythemia Vera, lupus, MGUS more. Can't find MM oncologist
Hi All. Finally have formal diagnosis on several things. See title. Plus CHIP and chronic anemia. I can't find care. Not sure what to do....
Last active: May 28 9:43am
MGUS monitoring: What tests do you have done regularly?
I was diagnosed with MGUS about a year ago. They have been screening with labs. I’ve noticed some MGusers have bone marrow tests and some...
Last active: Dec 30, 2024
Can being over normal BMI weight cause MGUS to progress faster?
I was wondering how many of you have heard that being over the normal weight in the BMI can cause MGUS to progress faster. I...
Last active: Nov 29, 2024
MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio
The above was found in his blood serum test but follow-up 24 hr urine test showed only 2 free Kappas. Has anyone had experience with...
Last active: Aug 20 6:44pm
Long term MGUS: What changes have you had? Do's and Don'ts?
Hello everyone,You can call me Freespirit! I was diagnosed with Monoclonal Gammopathy of Undetermined Significance (MGUS) in 2021. Has anyone here had it that long?...
Last active: Aug 9 8:57pm
MGUS: Should I be concerned that my eGFR dropped from 77 to 57
I was diagnosed with MGUS 2 years ago when I was being tested for some sudden heart issues. I have testing every 6 months. I...
Last active: Oct 25, 2024
How high has anyone seen Lambda free light chain go with Mgus?
Going in Sept 3 for Bone marrow test .. symptom free but with accidentally finding of Lambda free light chain serum test 1200.6 with Kappa...
Last active: Sep 22, 2024
Should I be worried about my MGUS diagnosis and my M Spike rising?
I’m a 33 year old male and I was diagnosed with MGUS at the beginning of this year after recurring fevers and body aches the...
Last active: Sep 27 2:08pm
M-spike dropped from .13 to .08.
I’m seeing this as a good sign after being officially dx. w/MGUS 10/24. All my other blood work was good except my beta % was...
Last active: May 6 11:34am
Multiple myeloma lytic lesions pelvic area. What treatments?
Has anyone gone from mgus to multiple myeloma in pelvic area? Radiologist found problem in pelvic area, only on skeletal survey. Have to get an...
Last active: Jun 24, 2022
Want to talk about Multiple Myeloma: Anyone else?
Asking anyone who is going thru this experience to share any pro's or con's of this disease. As of now I'm in MGUS, will find...
Last active: 20 hours ago
Atrophic thyroid, has anyone dealt with this?
This just was discovered in a Ct scan for my case of lung sarcoidosis (I also have mgus). My appointment with an endocrinologist is two...
Last active: May 1, 2023
Smoldering Multiple Myeloma and symptoms
I have had MGUS since 2021 and now have smoldering multiple myeloma. I am now feeling something new. A symptom. Like a twinging or dull...
Last active: 1 day ago
No appointment scheduled for my labs at Mayo...??
I go to Mayo in Jacksonville Florida...I was diagnosed with a low count MGUS, several years ago. I automatically scheduled for all bloodwork every year,...
Last active: Jul 19 10:48am
Finding the best Curcumin
I am trying to find a good Curcumin supplement and could use some recommendations please. I am newly diagnosed with MGUS and want to do...
Last active: Aug 17, 2024