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Blood Cancers & Disorders Support Group

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Discussions (107)
How high has anyone seen Lambda free light chain go with Mgus?
Going in Sept 3 for Bone marrow test .. symptom free but with accidentally finding of Lambda free light chain serum test 1200.6 with Kappa...
Last active: Sep 22, 2024
MGUS: Should I be concerned that my eGFR dropped from 77 to 57
I was diagnosed with MGUS 2 years ago when I was being tested for some sudden heart issues. I have testing every 6 months. I...
Last active: Oct 25, 2024
Should I be worried about my MGUS diagnosis and my M Spike rising?
I’m a 33 year old male and I was diagnosed with MGUS at the beginning of this year after recurring fevers and body aches the...
Last active: Feb 27, 2024
M-spike dropped from .13 to .08.
I’m seeing this as a good sign after being officially dx. w/MGUS 10/24. All my other blood work was good except my beta % was...
Last active: May 6 11:34am
Multiple myeloma lytic lesions pelvic area. What treatments?
Has anyone gone from mgus to multiple myeloma in pelvic area? Radiologist found problem in pelvic area, only on skeletal survey. Have to get an...
Last active: Jun 24, 2022
Want to talk about Multiple Myeloma: Anyone else?
Asking anyone who is going thru this experience to share any pro's or con's of this disease. As of now I'm in MGUS, will find...
Last active: May 13 5:06pm
Atrophic thyroid, has anyone dealt with this?
This just was discovered in a Ct scan for my case of lung sarcoidosis (I also have mgus). My appointment with an endocrinologist is two...
Last active: May 1, 2023
No appointment scheduled for my labs at Mayo...??
I go to Mayo in Jacksonville Florida...I was diagnosed with a low count MGUS, several years ago. I automatically scheduled for all bloodwork every year,...
Last active: Apr 4 1:59am
Multiple lymph nodes throughout body
I have a history of MGUS which was diagnosed after a T6 vertebral compression fracture. Dexa shows mild osteopenia. Now I noticed multiple lymph nodes...
Last active: May 21 12:18pm
Finding the best Curcumin
I am trying to find a good Curcumin supplement and could use some recommendations please. I am newly diagnosed with MGUS and want to do...
Last active: Aug 17, 2024
Smoldering Multiple Myeloma and symptoms
I have had MGUS since 2021 and now have smoldering multiple myeloma. I am now feeling something new. A symptom. Like a twinging or dull...
Last active: Jun 10 11:27am
Lymphedema and Waldenstroms Macroglobulinemia
Has anyone else been diagnosed with MGUS (I had M spike) and then Waldenstroms Macroglobulinemia with MYD88 gene mutation (after undergoing bone marrow biopsy -...
Last active: Nov 8, 2024
Just diagnoised with Amyloidosis, kappa light chain restricted.
Does anyone have AL Amyloidosis? If so could you share what treatment you were on and the outcome? I have MGUS, my kidney numbers dropped...
Last active: Nov 12, 2024
Vacuolated neutrophils: I'm worried what this means
I have cryoglobulinemia and mGUS. I have historically had low neutrophils on my complete blood counts but the last one they were undetectable. Upon further...
Last active: Jan 14, 2022
Does anyone know how an FLC ratio of less than .1 effects the risk of
I was diagnosed with MGUS IgG lambda in June 2023 while having bloodwork for a DVT. I then had an ischemic attack in July 2023....
Last active: Jun 19 9:12am
Kappa chain and K/L ratio keeps increasing
I was diagnosed with Kappa IGG MGUS in 2020 but every blood work since then have shown my kappa chain and my ratio have increase,...
Last active: Apr 4 9:51am
M-Spike and Lambda light chain increasing while KL ratio decreasing
Was diagnosed with MGUS last spring. in the last 12 months M-Spike has increased .4 to .6 to 1.1 and most recently 1.4. Lambda light...
Last active: Apr 23 9:52am
Is it normal for free light chains to fluctuate?
Hi all, I hope you're all coping okay with whatever life is throwing at you at the moment. I have IGG lambda MGUS. My M-Spike...
Last active: Jun 6 7:43am
How high should my Kappa light chain continue to rise before I worry.?
My Kappa light chains continue to rise each time I have my labs run. They are now 90. The ratio rises also. But everything else...
Last active: Apr 13, 2024
Tests for blood cancer ...the bills!!
I've been getting blood tests through Mayo Clinic to monitor MGUS. I recently became covered by Medicare. My bill has jumped up to near $500...
Last active: Apr 25 10:18pm