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Blood Cancers & Disorders Support Group

Public Support Group
1,881 total results
Discussions (93)
M-Spike and Lambda light chain increasing while KL ratio decreasing
Was diagnosed with MGUS last spring. in the last 12 months M-Spike has increased .4 to .6 to 1.1 and most recently 1.4. Lambda light...
Last active: 2 days ago
Lymphedema and Waldenstroms Macroglobulinemia
Has anyone else been diagnosed with MGUS (I had M spike) and then Waldenstroms Macroglobulinemia with MYD88 gene mutation (after undergoing bone marrow biopsy -...
Last active: Nov 8, 2024
Just diagnoised with Amyloidosis, kappa light chain restricted.
Does anyone have AL Amyloidosis? If so could you share what treatment you were on and the outcome? I have MGUS, my kidney numbers dropped...
Last active: Nov 12, 2024
Vacuolated neutrophils: I'm worried what this means
I have cryoglobulinemia and mGUS. I have historically had low neutrophils on my complete blood counts but the last one they were undetectable. Upon further...
Last active: Jan 14, 2022
Is it normal for free light chains to fluctuate?
Hi all, I hope you're all coping okay with whatever life is throwing at you at the moment. I have IGG lambda MGUS. My M-Spike...
Last active: Oct 29, 2024
Tests for blood cancer ...the bills!!
I've been getting blood tests through Mayo Clinic to monitor MGUS. I recently became covered by Medicare. My bill has jumped up to near $500...
Last active: Dec 27, 2018
Waldenstroms Macroglobulemia
Hello---I have been a watch and wait MGUS patient and now my oncologist believes I have WM due to lab tests, spleen, etc. Had a...
Last active: Mar 5 9:53pm
How high should my Kappa light chain continue to rise before I worry.?
My Kappa light chains continue to rise each time I have my labs run. They are now 90. The ratio rises also. But everything else...
Last active: Apr 13, 2024
Jak 2 and Waldenstrom's Macroglobulinemia
Hi to all on this group. I was diagnosed with jak 2 and mgus in 2016 and then Waldromstrom Macroglobulinemia(WM) in august 2019. The hematology/oncology...
Last active: Mar 10, 2021
A Pint of Sweat, Saves a Gallon of Blood
That's from George Patton I have a bloody dilemma. I have chronic anemia, although my iron levels are fine. I have MGUS, which I am...
Last active: Feb 29, 2024
Anyone Else with Waldenstrom's and COPD?
I was diagnosed in February with Waldenstrom's. Here's my blood work just before the bone marrow biopsy. My IgM count last month was 634. CBC...
Last active: Jan 6, 2024
possible Myeloma ? big shocking surprise !!
Just received 2nd blood work results .... Quest's 1st blood work "Interpretation" was Possible monoclonal protein (M-protein) present. Suggest serum immunofixation. Had 2nd blood work...
Last active: Nov 18, 2022
Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait
Interested in connecting with others with the same diagnosis. Looking into dietary changes that could help.I will introduce myself to the group. This will be...
Last active: Aug 12, 2024