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Blood Cancers & Disorders Support Group

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Discussions (86)
Living with ET
I have just recently been diagnosed with JAK 2 positive ET and I am only 48. Coming to terms with the “c” word has been...
Last active: Sep 28 1:57pm
Essential Thrombocythemia (ET) and viruses
I was diagnosed with Essential Thrombocythemia a few months ago, and I’m positive for JAK 2. So far, I have a “mild” case (platelets are...
Last active: Dec 13, 2023
Soft-Tissue Masses Not Diagnosed
We all know when we’re sick, right? Well, I’m sick, but I can’t get a diagnosis of my illness. My symptoms have been going on...
Last active: Aug 23, 2023
Lightheaded with ET
Hi everyone. I’m 70, diagnosed with ET in June, 2022, and JAK 2 positive. I’m only taking 2 low-dose aspirin a day because my platelets...
Last active: Apr 22 6:04pm
Sudden gross hematuria
I was diagnosed with MPN JAK-2 last year. Polycythemia Vera and/or essential thrombocytopenia Initially needed 2 phlebotomy’s and 2 Gm/day Hydroxyurea. Labs tanked so slowly...
Last active: Oct 9, 2022
What are pros of hydroxyurea vs other methods of lowering platelets?
I am 47 & received my official diagnose today. I am JAK 2 mutation only & after a bone marrow biopsy & further genetic testing...
Last active: Jun 4 12:09am