Blood Cancers & Disorders Support Group

I was diagnosed with ET 2 1/2 years ago. I am on 500mg of Hydroxyuria a day and 1/2 a baby aspirin, and that keeps...

Just was diagnosed and had a bone marrow biopsy yesterday. Going on Pegasys...anyone traveled this road before me? I'm 67 and new to all this,...

Essential ThrombocytothemiaI had my last blood work on 9/25 and it was in the normal range. High end of normal but still in the normal...

Hi, I continue to research and learn from others with ET. I am 57, and diagnosed this past year. Jak2 positive, ET. I may have...

Hi all, I've suffered for many years with this MPN disorder, but it seems not many others have the same symptoms, so I'l posting this...

I currently have essential thrombocythemia with the JAK2 gene mutation. I currently take 500 mg of hydra seven times a week. I’m supposed to take...

I am new to Hydrea 500 mg daily for ET. I have taken it for only days. I am heading to a beach vacation for...

Have any of you been diagnosed with triple negative ET, ET early in life, or had it misdiagnosed for years before getting the accurate diagnosis?...

Would like to connect with other farmers who have been diagnosed with ET. Feel great when there is tractor work to be done on the...

Has any with ET, Jak2 found that Hydroxy Urea exacerbates a tendency to experience heat exhaustion when hiking in warm, humid conditions??

Has anyone been living with,ET, jac2 mutation

What does my surgeon need to know about my having MPN ET.

I recently started taking Hydroxyurea (for ET) with seemingly minimal side effects if any. However, I've been reading about having to avoid the sun rays...

Does anyone know if there is a link between Rheumatoid Arthritis and ET? Is one more prone to RA with a JAK2 mutation?

I am A soon to be 70 year old woman with ET, JAK 2. Since I am on HU (500 mg/day), sensitive to sun and...

I have taken Fosomax just 5 times over the past 5 weeks along with my dose of HU for ET. They don't like each other...

I’m taking HU for ET (500 mg per day). Am I correct in assuming that I am considered to be immuno-compromised?

Hi, I’m newly diagnosed ET since early March and on Hydrea 1,000 every second day and 500 on in between days. Other than fatigue and...

Has anyone experienced severe foot nerve pain with myelofibrosis? I have post ET MF and medication has not changes since transformation to ET 5 years...

I was recently diagnosed with Essential Thrombocythemia, a rare incurable blood cancer. Platelet count aside, I am asymptotic. This current condition morphed from (constitutional) thrombcytosis,...