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Public Support Group 461 total results
Discussions (25)
INCA033989 therapy to watch for CALR+ MPN patients
INCA033989 is a new drug that targets the CALR mutation in patients with MPNs (especially ET and MF). Something to keep an eye on, especially...
Anyone experienced Bone Marrow Transplant with TP53 mutation?
After 10 healthy years, living with Essential Thrombocythemia w/JAK2 mutation and taking Hydroxyurea, my blood disease has transitioned into Myelofibrosis. I'm now taking Jakafi for...
Anyone with primary myelofibrosis, low risk, asymptomatic?
Is there anyone here suffer from PMF? Or whose doctor diagnosed him primary myelofibrosis with low risk, no symptoms, my doctor is very hesitant to...
Complications MOHS surgery while having ET and Von Willebrand's?
I am 71, active, and in relatively good health. I have ET and VW's, my platelet numbers are around 520 with treatment (Jakifi). Im scheduled...
Does anyone with Myelofibrosis suffer musscle spasm?
At first I thought they were just cramps or what I call charlie horses. Then I was told they were muscle spasms. They happen at...
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