Blood Cancers & Disorders Support Group

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Comments (103)

@loribmt No I have essential Thrombocytosis jak2+

https://connect.mayoclinic.org/comment/1464688/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2025

@lynnevb and everyone, you may also be interested in these existing related discussions: - New to...

https://connect.mayoclinic.org/comment/1009560/

Discussion: ET management, Is anyone here taking Jakafi or Pegasus?

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2024

@carlavan, welcome to Connect. I moved your discussion to the Blood Cancers & Disorders group and...

https://connect.mayoclinic.org/comment/194264/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2018

Hi Erikaerika… I have a question. We’re you diagnosed with TB….tuberculosis? Or were you diagnosed with...

https://connect.mayoclinic.org/comment/799578/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2023

I have just read this article re alternatives to Hydroxyurea. Has anyone else heard of this?...

https://connect.mayoclinic.org/comment/1054684/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2024

@sdcgcarroll, as you navigate the new world of essential thrombocytosis (ET), I recommend using the group...

https://connect.mayoclinic.org/comment/1535115/

Discussion: Newly Diagnosed Essential Thrombocytosis

Support Group: Blood Cancers & Disorders

Posted: Mar 25 12:02pm

ET is essential thrombocytosis. It is in the same family as PV. ET patients have high...

https://connect.mayoclinic.org/comment/737837/

Discussion: Have ET: What if spleen is enlarged?

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2022

Hola, @vivoconte I moved your post to this discussion group: - Essential Thrombocythemia: Looking for information...

https://connect.mayoclinic.org/comment/825716/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2023

My hematologist at University of Chicago Medicine also told me numerous times that essential thrombocytosis is...

https://connect.mayoclinic.org/comment/947219/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2023

Welcome @jacquelineh. You are not alone. If you use the Search bar at the top of...

https://connect.mayoclinic.org/comment/868132/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: May 28, 2023

I was confused by this also. My hematologist told me I have Essential Thrombocytosis but my...

https://connect.mayoclinic.org/comment/805735/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2023

I have been diagnosed with Essential Thrombocytosis. Im concerned about the side affects of Hydroxyurea, and...

https://connect.mayoclinic.org/comment/1171792/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2024

Essential Thrombocytosis. Basically, it's an excess of platelets in our blood. Some of us make too...

https://connect.mayoclinic.org/comment/844550/

Discussion: Lightheaded with ET

Support Group: Blood Cancers & Disorders

Posted: Apr 17, 2023

I have been diagnosed with Essential Thrombocytosis. Concerned about the side affects of Hydroxyurea and using...

https://connect.mayoclinic.org/comment/1171789/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2024

I have Essential thrombocytosis with JAK2 mutation. I take a drug called hydrea and it has...

https://connect.mayoclinic.org/comment/916876/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2023

Essential Thrombocytosis is too many platelets (ET). There are other disorders that can cause a decrease...

https://connect.mayoclinic.org/comment/930399/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2023

Wow! Good luck. I’m the opposite - my platelet count was 1.1 million. Essential Thrombocytosis. After...

https://connect.mayoclinic.org/comment/964574/

Discussion: Aplastic Anemia and dealing with low Platelet counts

Support Group: Blood Cancers & Disorders

Posted: Nov 14, 2023

My comment was somewhat vague. I had my first visit with hematologist/oncologist that diagnosed Essential Thrombocytosis...

https://connect.mayoclinic.org/comment/1312651/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 25, 2025

Good Morning. Are you sure there is no correlation between itching, hives and essential thrombocytosis? I...

https://connect.mayoclinic.org/comment/817435/

Discussion: Essential thrombocythemia (ET) and breaking out in hives: What helps?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

I was diagnosed with myelofibrosis about 4 1/2 years ago. I formerly was diagnosed with essential...

https://connect.mayoclinic.org/comment/132598/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2017