Blood Cancers & Disorders Support Group

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Comments (57)

Welcome, @chastenn. I moved your question about information regarding mantle cell lymphoma to this related discussion...

https://connect.mayoclinic.org/comment/1233282/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Feb 9, 2025

WElcome, @saltareus. I'm tagging fellow MCL members like @nhlbob @arbutus @angelu94 @ffb1234 @chastenn who can share...

https://connect.mayoclinic.org/comment/1249474/

Discussion: Stage IIIB Mantle Cell lymphoma with skin involvement just diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2025

@balvare, I moved your question about mantle cell lymphoma and treatment experiences to this existing discussion:...

https://connect.mayoclinic.org/comment/1444334/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2025

So helpful, @gigigatta. Thank you. Are you taking zanubrutinib for relapsed mantle cell lymphoma?

https://connect.mayoclinic.org/comment/1159210/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Oct 18, 2024

I have had pancyopinia since 2005 when I had chemo for mantle cell lymphoma.

https://connect.mayoclinic.org/comment/1465237/

Discussion: Anyone have idiopathic pancytopenia?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2025

I do not have Leukemia. I m have B Mantle Cell Lymphoma.

https://connect.mayoclinic.org/comment/801643/

Discussion: Concerned: CLL in remission, but feel lousy, what to do?

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2023

I was recently diagnosed with Mantle Cell Lymphoma and would appreciate hearing from anyone who is...

https://connect.mayoclinic.org/comment/243046/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2019

Good morning, @denyelle18. Congratulations on being in remission for 2 years! It’s a wonderful feeling when...

https://connect.mayoclinic.org/comment/993012/

Discussion: Mantle cell lymphoma: How long do I have? What's next?

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2024

Hi, @lottajoy. I wanted to let you know I moved your post to this existing discussion...

https://connect.mayoclinic.org/comment/243047/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2019

Is anyone on this site being treated for mantle cell lymphoma? If so, what treatment are...

https://connect.mayoclinic.org/comment/1442408/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2025

@glueski The initial trial was very small at Mayo--Mayo only was allotted six slots and included...

https://connect.mayoclinic.org/comment/1525285/

Discussion: How are you managing Brukinsa side effects?

Support Group: Blood Cancers & Disorders

Posted: Mar 12 10:52am

I am 72 years old and am on zanubrutinib for 3 months after a diagnosis of...

https://connect.mayoclinic.org/comment/1154671/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Oct 9, 2024

@mclny. Welcome to Mayo Connect. It was a good thing to get your leg checked after...

https://connect.mayoclinic.org/comment/1416721/

Discussion: MCL and swelling of leg

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2025

B-PLL no longer exists per the upcoming 5th edition of the World Health Organization Classification of...

https://connect.mayoclinic.org/comment/756812/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2022

I noticed several asking for more information. There are many Facebook groups that may provide information....

https://connect.mayoclinic.org/comment/243050/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2019

Hi Suppiskey2surv, I had RCHOP and RDHAP about 10 years ago for Mantle Cell Lymphoma. Have...

https://connect.mayoclinic.org/comment/1416068/

Discussion: Anyone had long term remission R-CHOP chemo for Large B-Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2025

Hello @roberthall0452, welcome to Connect. I would like to introduce you to another new member, @harvie,...

https://connect.mayoclinic.org/comment/243044/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2019

A needle biopsy was done and I was suspected of having CLL. When a wide neck...

https://connect.mayoclinic.org/comment/789321/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2022

Hi, I was diagnosed with stage 3 Mantle Cell Lymphoma 10 years ago. I was treated...

https://connect.mayoclinic.org/comment/1347848/

Discussion: Anyone have Rituximab infusion for lymphoma treatment? Did it help?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2025

@allzac, welcome. I moved your question to the Blood Cancers & Disorders support group where you...

https://connect.mayoclinic.org/comment/1139053/

Discussion: Mantle cell lymphoma: what testing is done when on watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2024