Blood Cancers & Disorders Support Group

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Comments (46)

Welcome, @chastenn. I moved your question about information regarding mantle cell lymphoma to this related discussion...

https://connect.mayoclinic.org/comment/1233282/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Feb 9 8:07pm

WElcome, @saltareus. I'm tagging fellow MCL members like @nhlbob @arbutus @angelu94 @ffb1234 @chastenn who can share...

https://connect.mayoclinic.org/comment/1249474/

Discussion: Stage IIIB Mantle Cell lymphoma with skin involvement just diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 3 11:52am

Hi @susan1000, welcome. You may wish to connect with others living with mantle cell lymphoma in...

https://connect.mayoclinic.org/comment/750557/

Discussion: Mantle Cell Lymphoma and MDS (RARS)

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2022

So helpful, @gigigatta. Thank you. Are you taking zanubrutinib for relapsed mantle cell lymphoma?

https://connect.mayoclinic.org/comment/1159210/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Oct 18, 2024

I do not have Leukemia. I m have B Mantle Cell Lymphoma.

https://connect.mayoclinic.org/comment/801643/

Discussion: Concerned: CLL in remission, but feel lousy, what to do?

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2023

I was recently diagnosed with Mantle Cell Lymphoma and would appreciate hearing from anyone who is...

https://connect.mayoclinic.org/comment/243046/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2019

Good morning, @denyelle18. Congratulations on being in remission for 2 years! It’s a wonderful feeling when...

https://connect.mayoclinic.org/comment/993012/

Discussion: Mantle cell lymphoma: How long do I have? What's next?

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2024

Hi, @lottajoy. I wanted to let you know I moved your post to this existing discussion...

https://connect.mayoclinic.org/comment/243047/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2019

I am 72 years old and am on zanubrutinib for 3 months after a diagnosis of...

https://connect.mayoclinic.org/comment/1154671/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Oct 9, 2024

Hello @downbytheriver, Welcome to Connect. I'm not sure anyone can answer the question you ask but...

https://connect.mayoclinic.org/comment/631108/

Discussion: CPAP (Phillips recall) and Cancer

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2021

B-PLL no longer exists per the upcoming 5th edition of the World Health Organization Classification of...

https://connect.mayoclinic.org/comment/756812/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2022

My husband just found out about the Dreamstation recall. He only found out because he was...

https://connect.mayoclinic.org/comment/631067/

Discussion: CPAP (Phillips recall) and Cancer

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2021

Hello @roberthall0452, welcome to Connect. I would like to introduce you to another new member, @harvie,...

https://connect.mayoclinic.org/comment/243044/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2019

I noticed several asking for more information. There are many Facebook groups that may provide information....

https://connect.mayoclinic.org/comment/243050/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2019

@allzac, welcome. I moved your question to the Blood Cancers & Disorders support group where you...

https://connect.mayoclinic.org/comment/1139053/

Discussion: Mantle cell lymphoma: what testing is done when on watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2024

A needle biopsy was done and I was suspected of having CLL. When a wide neck...

https://connect.mayoclinic.org/comment/789321/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2022

My husband was recently diagnosed with mantle cell lymphoma. He is 66 and otherwise in good...

https://connect.mayoclinic.org/comment/893729/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jul 11, 2023

Hi @bosunpup, Leptomeningeal disease occurs when your cancer has spread to the meninges. The meninges line...

https://connect.mayoclinic.org/comment/335645/

Discussion: Leptomeningeal Disease and CLL

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2021

I'm 64 and was diagnosed with Mantle Cell Lymphoma 2.5 years ago, stage 1. I'm still...

https://connect.mayoclinic.org/comment/705932/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2022

Hi @nhlbob “I'm so confused, bewildered and terrified at the moment…” Well of course you, are...

https://connect.mayoclinic.org/comment/704677/

Discussion: Just diagnosed with Mantle Cell Lymphoma 23+ and looking for input

Support Group: Blood Cancers & Disorders

Posted: May 2, 2022