Blood Cancers & Disorders: Discussions

@jeffreykassover1, I moved your question to this existing discussion: - What are your experiences with lenalidomide...

https://connect.mayoclinic.org/comment/1277345/

Discussion: What are your experiences with lenalidomide (Revlimid) for MDS?

Support Group: Blood Cancers & Disorders

Posted: Apr 8 5:59pm

Hi @jps01, you might also find these related discussions helpful: - Myelodysplastic syndromes (MDS): When do...

https://connect.mayoclinic.org/comment/901509/

Discussion: MDS: How to improve my condition in watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Jul 24, 2023

@corvairfan and @tyson1221, here are a few additional discussions on MDS that you may also be...

https://connect.mayoclinic.org/comment/811058/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2023

My husband has been fighting CmL and MDS for almost two Hopefully your hubby doesn’t get...

https://connect.mayoclinic.org/comment/1284816/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Apr 18 2:35pm

Hi @sherrylou, and welcome to Connect. It looks like you’ve been diagnosed with Myelodyplastic Syndromes or...

https://connect.mayoclinic.org/comment/1229822/

Discussion: Low hemoglobin and enlarged liver and spleen

Support Group: Blood Cancers & Disorders

Posted: Feb 5 8:03am

Hello @anne8185, welcome to Connect. I am not familiar with VEXAS so as you can see...

https://connect.mayoclinic.org/comment/996534/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2024

Hi. Yes, there are other potential medications than Vidaz used to treat MDS. Though Azacitidine (Vidaza)...

https://connect.mayoclinic.org/comment/1283544/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Apr 16 6:00pm

Hello @donnamae90. Unfortunately, fatigue can be a side effect of MDS if there is a decrease...

https://connect.mayoclinic.org/comment/1192846/

Discussion: Can anything help ongoing fatigue from myelodysplastic syndromes (MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2024

Hi @nbert and welcome to Connect. It’s nice to have the option for propofol with the...

https://connect.mayoclinic.org/comment/1150075/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2024

Hi @marcyjo, Welcome to Mayo Clinic Connect. I’m happy you found us. There are several discussions...

https://connect.mayoclinic.org/comment/801182/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2023

Welcome to Connect @suetex There are several members in the forum who also have MDS. I’ve...

https://connect.mayoclinic.org/comment/1014244/

Discussion: Myelodysplastic Syndrome and Sjogren's

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2024

Are you seeing a MDS specialist? Anemia with MDS is not caused by an iron deficiency.

https://connect.mayoclinic.org/comment/1001814/

Discussion: Anyone take an iron supplement for low red blood cell count?

Support Group: Blood Cancers & Disorders

Posted: Jan 22, 2024

Hello @kharmer and welcome to Connect. With your husband’s blood numbers being low, especially his hemoglobin,...

https://connect.mayoclinic.org/comment/1285209/

Discussion: has anyone had Long Covid, before a diagnosis of MDS?

Support Group: Blood Cancers & Disorders

Posted: 6 days ago

@links, you may also be interested in this related discussion - Living with MDS https://connect.mayoclinic.org/discussion/living-with-mds/ Have...

https://connect.mayoclinic.org/comment/1054908/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2024

Welcome to Connect, @callahan. There are several discussions in the forum with members who have MDS....

https://connect.mayoclinic.org/comment/1217786/

Discussion: Waldenstrom's: Should I take the new medication (rituximab)?

Support Group: Blood Cancers & Disorders

Posted: Jan 20 8:36pm

Thanks again not sure if I have that could be MDS for me not sure if...

https://connect.mayoclinic.org/comment/817111/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2023

That was MDS/AML.

https://connect.mayoclinic.org/comment/1256815/

Discussion: Older than most in the MM group. 79 yrs and recently diagnosed.

Support Group: Blood Cancers & Disorders

Posted: Mar 13 8:52am

Welcome to Connect, @questions2023. Inqovi is a type of chemotherapy to treat patients with MDS (and...

https://connect.mayoclinic.org/comment/1281488/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Apr 14 8:30am

Hi @revbobcoulson I admit MDS Extended isn’t a term I’ve heard before and not sure what...

https://connect.mayoclinic.org/comment/1202272/

Discussion: Anyone living with MDS Extended diagnosis experience?

Support Group: Blood Cancers & Disorders

Posted: Jan 2 9:10am

So dx is MDs EB-2 gona be on meds an transfusions as needed any insight from...

https://connect.mayoclinic.org/comment/820915/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2023

Blood Cancers & Disorders Support Group