Blood Cancers & Disorders: Discussions

I think MDS- IB2 is likely intermediate risk which would be same treatment protocol for a...

https://connect.mayoclinic.org/comment/1385367/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 2 8:29pm

Hi @jps01, you might also find these related discussions helpful: - Myelodysplastic syndromes (MDS): When do...

https://connect.mayoclinic.org/comment/901509/

Discussion: MDS: How to improve my condition in watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Jul 24, 2023

@corvairfan and @tyson1221, here are a few additional discussions on MDS that you may also be...

https://connect.mayoclinic.org/comment/811058/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2023

Hello @anne8185, welcome to Connect. I am not familiar with VEXAS so as you can see...

https://connect.mayoclinic.org/comment/996534/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2024

Welcome to Connect @suetex There are several members in the forum who also have MDS. I’ve...

https://connect.mayoclinic.org/comment/1014244/

Discussion: Myelodysplastic Syndrome and Sjogren's

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2024

Hello @donnamae90. Unfortunately, fatigue can be a side effect of MDS if there is a decrease...

https://connect.mayoclinic.org/comment/1192846/

Discussion: Can anything help ongoing fatigue from myelodysplastic syndromes (MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2024

Hi @marcyjo, Welcome to Mayo Clinic Connect. I’m happy you found us. There are several discussions...

https://connect.mayoclinic.org/comment/801182/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2023

Hi @nbert and welcome to Connect. It’s nice to have the option for propofol with the...

https://connect.mayoclinic.org/comment/1150075/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2024

Are you seeing a MDS specialist? Anemia with MDS is not caused by an iron deficiency.

https://connect.mayoclinic.org/comment/1001814/

Discussion: Anyone take an iron supplement for low red blood cell count?

Support Group: Blood Cancers & Disorders

Posted: Jan 22, 2024

@jeffreykassover1, I moved your question to this existing discussion: - What are your experiences with lenalidomide...

https://connect.mayoclinic.org/comment/1277345/

Discussion: What are your experiences with lenalidomide (Revlimid) for MDS?

Support Group: Blood Cancers & Disorders

Posted: Apr 8 5:59pm

Hi @sherrylou, and welcome to Connect. It looks like you’ve been diagnosed with Myelodyplastic Syndromes or...

https://connect.mayoclinic.org/comment/1229822/

Discussion: Low hemoglobin and enlarged liver and spleen

Support Group: Blood Cancers & Disorders

Posted: Feb 5 8:03am

@links, you may also be interested in this related discussion - Living with MDS https://connect.mayoclinic.org/discussion/living-with-mds/ Have...

https://connect.mayoclinic.org/comment/1054908/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2024

Welcome to Connect, @callahan. There are several discussions in the forum with members who have MDS....

https://connect.mayoclinic.org/comment/1217786/

Discussion: Waldenstrom's: Should I take the new medication (rituximab)?

Support Group: Blood Cancers & Disorders

Posted: Jan 20 8:36pm

You may also want to change to an MDS Center of Excellence. You can find listings...

https://connect.mayoclinic.org/comment/1365515/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 7 8:31am

Thanks again not sure if I have that could be MDS for me not sure if...

https://connect.mayoclinic.org/comment/817111/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2023

Welcome, @jschellhaas. It is scary to get a new diagnosis. To help you connect others living...

https://connect.mayoclinic.org/comment/1198238/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2024

So dx is MDs EB-2 gona be on meds an transfusions as needed any insight from...

https://connect.mayoclinic.org/comment/820915/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2023

Hi @golddust Fellow Coloradoan and I share MDS with you but not the hemochromatosis. Your profile...

https://connect.mayoclinic.org/comment/1422418/

Discussion: Anyone have MDS + Hemochromatosis? Who specializes in both?

Support Group: Blood Cancers & Disorders

Posted: Oct 24 9:36am

Hi @revbobcoulson I admit MDS Extended isn’t a term I’ve heard before and not sure what...

https://connect.mayoclinic.org/comment/1202272/

Discussion: Anyone living with MDS Extended diagnosis experience?

Support Group: Blood Cancers & Disorders

Posted: Jan 2 9:10am

@katgob - you're in great hands at COH! Myelodysplastic syndromes (MDS) likely stem from a mix...

https://connect.mayoclinic.org/comment/1313497/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 26 4:00pm

Blood Cancers & Disorders Support Group