Blood Cancers & Disorders Support Group

@honeymae Are you still with MDS. Sounds like my husband who was diagnosed MDS at first,...

https://connect.mayoclinic.org/comment/1586838/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: May 30 11:50am

Hi @jps01, you might also find these related discussions helpful: - Myelodysplastic syndromes (MDS): When do...

https://connect.mayoclinic.org/comment/901509/

Discussion: MDS: How to improve my condition in watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Jul 24, 2023

@corvairfan and @tyson1221, here are a few additional discussions on MDS that you may also be...

https://connect.mayoclinic.org/comment/811058/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2023

@asarnesejr, here is a listing of all the discussions in the group related to MDS: https://connect.mayoclinic.org/group/blood-cancers-disorders/?search=MDS&index=discussions...

https://connect.mayoclinic.org/comment/1453019/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2025

Welcome, @sharifaa. I moved your post to this existing discussion: - Living with MDS (Myelodyplastic syndromes)...

https://connect.mayoclinic.org/comment/1586775/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: May 30 10:40am

Hello My spouse was recently diagnosed with MDS. When I looked at his after office visit...

https://connect.mayoclinic.org/comment/1596391/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 12 9:11am

Hello @anne8185, welcome to Connect. I am not familiar with VEXAS so as you can see...

https://connect.mayoclinic.org/comment/996534/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2024

Welcome to Connect @suetex There are several members in the forum who also have MDS. I’ve...

https://connect.mayoclinic.org/comment/1014244/

Discussion: Myelodysplastic Syndrome and Sjogren's

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2024

I've just been diagnosed with MDS. Is skin itching part of MDS?

https://connect.mayoclinic.org/comment/1527273/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Mar 15 8:48am

Hi @marcyjo, Welcome to Mayo Clinic Connect. I’m happy you found us. There are several discussions...

https://connect.mayoclinic.org/comment/801182/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2023

Hello @donnamae90. Unfortunately, fatigue can be a side effect of MDS if there is a decrease...

https://connect.mayoclinic.org/comment/1192846/

Discussion: Can anything help ongoing fatigue from myelodysplastic syndromes (MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2024

Hi @nbert and welcome to Connect. It’s nice to have the option for propofol with the...

https://connect.mayoclinic.org/comment/1150075/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2024

Hi Barbara @barbeeh51 Each of us has a unique chemistry so ‘one size does not fit...

https://connect.mayoclinic.org/comment/1592202/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 6 5:48pm

@jeffreykassover1, I moved your question to this existing discussion: - What are your experiences with lenalidomide...

https://connect.mayoclinic.org/comment/1277345/

Discussion: What are your experiences with lenalidomide (Revlimid) for MDS?

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2025

Are you seeing a MDS specialist? Anemia with MDS is not caused by an iron deficiency.

https://connect.mayoclinic.org/comment/1001814/

Discussion: Anyone take an iron supplement for low red blood cell count?

Support Group: Blood Cancers & Disorders

Posted: Jan 22, 2024

Hi @sherrylou, and welcome to Connect. It looks like you’ve been diagnosed with Myelodyplastic Syndromes or...

https://connect.mayoclinic.org/comment/1229822/

Discussion: Low hemoglobin and enlarged liver and spleen

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2025

@links, you may also be interested in this related discussion - Living with MDS https://connect.mayoclinic.org/discussion/living-with-mds/ Have...

https://connect.mayoclinic.org/comment/1054908/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2024

Welcome to Connect, @callahan. There are several discussions in the forum with members who have MDS....

https://connect.mayoclinic.org/comment/1217786/

Discussion: Waldenstrom's: Should I take the new medication (rituximab)?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2025

@sonieaml The SRSF2 gene us a splicing gene normally associated with MDS. The JAK2 gene is...

https://connect.mayoclinic.org/comment/1551390/

Discussion: Just got my blood test results today. I have MDS

Support Group: Blood Cancers & Disorders

Posted: Apr 15 4:14pm

I think MDS- IB2 is likely intermediate risk which would be same treatment protocol for a...

https://connect.mayoclinic.org/comment/1385367/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2025