Connect
Public Support Group 2,287 total results
Comments (2,156)
Most ET patients live a normal life span. My dad had it and lived to be...
https://connect.mayoclinic.org/comment/1525738/
@jodyjazz The congestion some of us experience is not from HU but from ET itself. Always...
https://connect.mayoclinic.org/comment/1534972/
Do you have a firm diagnosis? Sounds like the oncology tests were inconclusive, no genetic markers...
https://connect.mayoclinic.org/comment/1522419/
@sdcgcarroll, as you navigate the new world of essential thrombocytosis (ET), I recommend using the group...
https://connect.mayoclinic.org/comment/1535115/
Without success, I've been looking for a great recent comment from nohrt4me. As I recall, Jean...
https://connect.mayoclinic.org/comment/1534216/
lexsjk, I am so sorry for what you have been through. ET is so rare that...
https://connect.mayoclinic.org/comment/1528764/
Re migraines: Once the aura was gone, the headache was bearable, though lying down in a...
https://connect.mayoclinic.org/comment/1529428/
In my research after receiving an ET diagnosis, I've read that the "average" life expectancy of...
https://connect.mayoclinic.org/comment/1018305/
essential thrombocythemia (ET) can sometimes be diagnosed without a bone marrow biopsy if a driver mutation...
https://connect.mayoclinic.org/comment/1507899/
78 year old woman Recently diagnosed with ET and JAK2 , Last week I experienced uncomfortable...
https://connect.mayoclinic.org/comment/1524662/
@milestogo, along with @vivoconte, I'm tagging a few other "babies" like @tinak123 @nancyra and @lynnevb who...
https://connect.mayoclinic.org/comment/1526898/
my oncologist does not acknowledge bone pain from ET. I don't have any neuropathy and no...
https://connect.mayoclinic.org/comment/1279375/
You must have so many questions! You might want to use the search bar at the...
https://connect.mayoclinic.org/comment/1244801/
Hi @emma1971, Welcome to Connect. The medication you’re referring to, Ruxolitinib is actually a medication used...
https://connect.mayoclinic.org/comment/1293785/
Platelet production can be stimulated by extreme blood loss (as from an injury); heavy drinking; or...
https://connect.mayoclinic.org/comment/1522994/
@kat260 Hello, I am 60 years as well and diagnosed with Et Jak 2 in November...
https://connect.mayoclinic.org/comment/1522171/
This is exactly what I heard from my two ET doctors. According to them it could...
https://connect.mayoclinic.org/comment/1161622/
I am interested in resources for ET. I am newly diagnosed with ET and PV. All...
https://connect.mayoclinic.org/comment/967778/
I have ET with JAK2. My doc told it me means its a gene mutation...but not...
https://connect.mayoclinic.org/comment/1507620/
ET isn't the worst possible diagnosis -- but it's not a walk in the park, either....
https://connect.mayoclinic.org/comment/1489348/
- First
- 1
- 2
- 3
- 4
- ...
- Next
- Last
Connect