Blood Cancers & Disorders Support Group

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Comments (115)

Hi @dhbskier There are different subtypes of CMML (Chronic myelomonocytic leukemia) so your hematologist most likely...

https://connect.mayoclinic.org/comment/1593363/

Discussion: Diagnosed with a myeloid neoplasm (chronic myelomonocytic leukemia)

Support Group: Blood Cancers & Disorders

Posted: Jun 8 8:41am

@mycmml, I add my welcome. Using the group search, I also found these related discussions that...

https://connect.mayoclinic.org/comment/1674328/

Discussion: Diagnosed with CMML. On HU for past 6 months. Considering BESREMi.

Support Group: Blood Cancers & Disorders

Posted: Sep 19 8:53am

Hi Colleen< br>Thank you for your response. Please note that my illness is CMML. The leukemias...

https://connect.mayoclinic.org/comment/101837/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 22, 2016

Hello @beewoman70 and welcome to Mayo Connect. Your @name is intriguing…are you a beekeeper by any...

https://connect.mayoclinic.org/comment/932532/

Discussion: CMML vs CMUS

Support Group: Blood Cancers & Disorders

Posted: Sep 19, 2023

@sme225 what is the difference between CML and CMML?

https://connect.mayoclinic.org/comment/1580165/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: May 21 6:59pm

Welcome to Connect, @susanmarie52 Being newly diagnosed with CMML-1. (Chronic myelomonocytic leukemia I’m sure your head...

https://connect.mayoclinic.org/comment/1592181/

Discussion: Diagnosed with a myeloid neoplasm (chronic myelomonocytic leukemia)

Support Group: Blood Cancers & Disorders

Posted: Jun 6 5:22pm

Here is a very recent free presentation on CMML (Chronic Myelomonocytic Leukemia (CMML). This webcast, featuring...

https://connect.mayoclinic.org/comment/1592496/

Discussion: Diagnosed with a myeloid neoplasm (chronic myelomonocytic leukemia)

Support Group: Blood Cancers & Disorders

Posted: Jun 7 7:44am

My husband has been on Inqovi for CMML for 15 months. Oncologist also has been happy...

https://connect.mayoclinic.org/comment/1690885/

Discussion: Diagnosed with CMML. On HU for past 6 months. Considering BESREMi.

Support Group: Blood Cancers & Disorders

Posted: 8 hours ago

I have been taking Inqovi for the last 11 months. Numbers are keeping my oncologist happy....

https://connect.mayoclinic.org/comment/1690102/

Discussion: Diagnosed with CMML. On HU for past 6 months. Considering BESREMi.

Support Group: Blood Cancers & Disorders

Posted: 1 day ago

It's great that you got a new PC and are now receiving care at a Cancer...

https://connect.mayoclinic.org/comment/1463451/

Discussion: They say I have CMML but bone marrow not there: What to do?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2025

Hi @edb1123 I was wondering how your friend is doing with her CMML diagnosis? Because CMML...

https://connect.mayoclinic.org/comment/1098410/

Discussion: Looking for recommendations of doctors with expertise in CMML

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

Welcome, @madhornet. I'm tagging a few other members who have experience with chronic myelomonocytic leukemia (CMML)...

https://connect.mayoclinic.org/comment/1040274/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2024

My apologies @jzier. Here's info specific to chronic myelomonocytic leukemia (CMML) from Cancer Research UK http://www.cancerresearchuk.org/about-cancer/cancers-in-general/cancer-questions/chronic-myelomonocytic-leukaemia-cmml...

https://connect.mayoclinic.org/comment/101838/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 23, 2016

Can you recommend a doctor at Mayo who specializes in CMML? Thanks Jzier

https://connect.mayoclinic.org/comment/101847/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2016

I was diagnosed with CMML ten years ago. What would you like to know?

https://connect.mayoclinic.org/comment/1366889/

Discussion: I would deeply appreciate feedback on patients diagnosed with CMML

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2025

I went to see my oncologist with my son. Not the best news. She said I...

https://connect.mayoclinic.org/comment/1098154/

Discussion: I've had CML for 20 years and want to encourage others

Support Group: Blood Cancers & Disorders

Posted: Jul 2, 2024

I have Cmml hemoglobin went down to 3.3 was put in hospital 12 days

https://connect.mayoclinic.org/comment/1369386/

Discussion: I would deeply appreciate feedback on patients diagnosed with CMML

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2025

Good morning, @jacklyn. From my understanding, specific acquired mutations can influence the direction of CMML and...

https://connect.mayoclinic.org/comment/1095573/

Discussion: I've had CML for 20 years and want to encourage others

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2024

Good morning, @jacklyn. Itching…I swear that can be worse than pain. Unfortunately it’s a lovely side...

https://connect.mayoclinic.org/comment/1329004/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2025

Diagnosed 4/22/26 with cmml.. 7% blasts . no treatment program yet . am considering my options....

https://connect.mayoclinic.org/comment/1598876/

Discussion: What's the expected trend and variance in blasts percentage?

Support Group: Blood Cancers & Disorders

Posted: Jun 15 4:28pm