Blood Cancers & Disorders Support Group

@slats Welcome to Connect. You’re already in a great discussion with members who have CLL..some in...

https://connect.mayoclinic.org/comment/1565636/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: May 3 1:33pm

@hissteps4u Good advice—EXCEPT there’s way more than a few CLL experts in the world. Numerous cancer...

https://connect.mayoclinic.org/comment/1571155/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: May 10 8:48am

@philipschuyler Lori has good advice. Also check out CLL Society website. Be sure you’re seeing a...

https://connect.mayoclinic.org/comment/1560548/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 27 6:25am

It’s different for everyone. I’m 78 and was diagnosed with CLL 20 years ago. If you’re...

https://connect.mayoclinic.org/comment/1555743/

Discussion: Chronic lymphocytic leukemia (CLL): How does it behave?

Support Group: Blood Cancers & Disorders

Posted: Apr 21 3:43am

@philipschuyler People usually no longer die from CLL due to all the excellent treatment options available....

https://connect.mayoclinic.org/comment/1563487/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 30 3:34pm

Hi @ksalvia, if that was less technical than you wanted, here are two of many DEEP...

https://connect.mayoclinic.org/comment/1565896/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: May 3 8:54pm

@dorothea58 Thank you for responding to me. The fact that most CLL patients are telling me...

https://connect.mayoclinic.org/comment/1566457/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: May 4 12:38pm

@cindyjenco I live in Minneapolis. We have a MN area CLL support group that meets monthly...

https://connect.mayoclinic.org/comment/1511104/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Feb 21 10:08am

Hi @jameshadyn Welcome to Connect. You’ve certainly had some good news with seeing a reversal in...

https://connect.mayoclinic.org/comment/1526652/

Discussion: Can Chronic Lymphocytic Leukemia (CLL) be cured?

Support Group: Blood Cancers & Disorders

Posted: Mar 14 10:30am

@mattg I will sign up with the CLL Society. Thank you very much for the info.

https://connect.mayoclinic.org/comment/1561363/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 27 11:12pm

@loribmt Good morning Lori- My husband saw a hematologist yesterday. He thinks it’s CLL but Mantle...

https://connect.mayoclinic.org/comment/1573712/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: 6 days ago

@minnesotajim Thank you for the information. I will look into joining the CLL Society. Have a...

https://connect.mayoclinic.org/comment/1563254/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 30 11:01am

Welcome @nadakhaled, that must be hard to learn that your father has been diagnosed with chronic...

https://connect.mayoclinic.org/comment/787133/

Discussion: Diagnosis of low grade lymphoma leukemia

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2022

@loriskt. Staging of CLL/SLL is interesting, but doesn't really drive treatment. It's not like most cancers....

https://connect.mayoclinic.org/comment/1575989/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: 2 days ago

@sherda, it is an odd sense of relief for finally have a diagnosis, isn't it? I'm...

https://connect.mayoclinic.org/comment/785638/

Discussion: Pending testing to confirm type of lymphoma

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2022

@sveta25 Welcome to Mayo Connect! CLL is a form of leukemia that tends to develop slowly....

https://connect.mayoclinic.org/comment/1453513/

Discussion: To continue or stop Venclexta treatment for CLL?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2025

I have cll. I had to switch to Mayo to get straight, honest responses. I understand...

https://connect.mayoclinic.org/comment/1559066/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 25 8:28am

Recently diagnosed with CLL. Have had a severe rash on lower legs for 6+ months...itchy and...

https://connect.mayoclinic.org/comment/865236/

Discussion: MGUS & Rash

Support Group: Blood Cancers & Disorders

Posted: May 23, 2023

@newwaldenguy Are you taking Brukinsa for CLL? When did your hemoglobin and RBC started improving? My...

https://connect.mayoclinic.org/comment/1538918/

Discussion: Who takes treatment Brukinsa?

Support Group: Blood Cancers & Disorders

Posted: Mar 30 2:30pm

Hi @sveta25 There are several members with CLL who receive Venetoclax for their treatment option. I...

https://connect.mayoclinic.org/comment/1551870/

Discussion: Does anybody take Venetoclax for CLL?

Support Group: Blood Cancers & Disorders

Posted: Apr 16 9:32am