Blood Cancers & Disorders Support Group

Hi @1retiredcboperator, Welcome to Mayo Connect. I’m from Wisconsin and can commiserate with you about the...

https://connect.mayoclinic.org/comment/1592601/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 7 9:04am

@gliderguy I was diagnosed 20 years ago and been on ZANUBRUTINIB for 9+ years. While CLL...

https://connect.mayoclinic.org/comment/1594821/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 10 7:15am

I hope you're being seen by a CLL specialist at Mayo Rochester. Oncologists treat many cancers...

https://connect.mayoclinic.org/comment/1591676/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 6 6:08am

Hi @sharina65 Welcome to Mayo Clinic Connect. I see you popped into the conversation about CLL...

https://connect.mayoclinic.org/comment/1600796/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 18 9:09am

@slats Welcome to Connect. You’re already in a great discussion with members who have CLL..some in...

https://connect.mayoclinic.org/comment/1565636/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: May 3 1:33pm

Hi @barbeeh51 Guess we got our wires crossed. 😉 I didn't, at all, sense that you...

https://connect.mayoclinic.org/comment/1596613/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 12 1:58pm

@hissteps4u Good advice—EXCEPT there’s way more than a few CLL experts in the world. Numerous cancer...

https://connect.mayoclinic.org/comment/1571155/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: May 10 8:48am

@philipschuyler Lori has good advice. Also check out CLL Society website. Be sure you’re seeing a...

https://connect.mayoclinic.org/comment/1560548/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 27 6:25am

Hello, I want to know if anyone have tried Keto Diet as complementary treatment for CLL?

https://connect.mayoclinic.org/comment/1596939/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 13 6:47am

@gliderguy Call the Hematology Department directly. If Scottsdale is at all like Rochester, they will get...

https://connect.mayoclinic.org/comment/1595573/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 11 7:19am

I have CLL and LPL. Diagnosed few months ago through blood work and bone biopsy. The...

https://connect.mayoclinic.org/comment/1580546/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: May 22 10:19am

Hello My spouse was recently diagnosed with MDS. When I looked at his after office visit...

https://connect.mayoclinic.org/comment/1596391/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 12 9:11am

Welcome @nadakhaled, that must be hard to learn that your father has been diagnosed with chronic...

https://connect.mayoclinic.org/comment/787133/

Discussion: Diagnosis of low grade lymphoma leukemia

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2022

It’s different for everyone. I’m 78 and was diagnosed with CLL 20 years ago. If you’re...

https://connect.mayoclinic.org/comment/1555743/

Discussion: Chronic lymphocytic leukemia (CLL): How does it behave?

Support Group: Blood Cancers & Disorders

Posted: Apr 21 3:43am

@sherda, it is an odd sense of relief for finally have a diagnosis, isn't it? I'm...

https://connect.mayoclinic.org/comment/785638/

Discussion: Pending testing to confirm type of lymphoma

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2022

@sveta25 Welcome to Mayo Connect! CLL is a form of leukemia that tends to develop slowly....

https://connect.mayoclinic.org/comment/1453513/

Discussion: To continue or stop Venclexta treatment for CLL?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2025

Recently diagnosed with CLL. Have had a severe rash on lower legs for 6+ months...itchy and...

https://connect.mayoclinic.org/comment/865236/

Discussion: MGUS & Rash

Support Group: Blood Cancers & Disorders

Posted: May 23, 2023

Hi @sveta25 There are several members with CLL who receive Venetoclax for their treatment option. I...

https://connect.mayoclinic.org/comment/1551870/

Discussion: Does anybody take Venetoclax for CLL?

Support Group: Blood Cancers & Disorders

Posted: Apr 16 9:32am

The White and lymphocyte reference ranges in the US are about the same. 10^9/L is a...

https://connect.mayoclinic.org/comment/113617/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2017

Welcome, @sveta25. Good questions about treatment for chronic lymphocytic leukemia. As you likely know treatments for...

https://connect.mayoclinic.org/comment/1455496/

Discussion: Anybody on treatment for CLL: What kind and what side effects?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2025