Blood Cancers & Disorders Support Group

@csrb7007, I moved your question to this related discussion: - BESREMi anyone? https://connect.mayoclinic.org/discussion/besremi-anyone/ Use the group...

https://connect.mayoclinic.org/comment/1637531/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Aug 4 2:35pm

There was some regulatory update regarding treatment option I posted in another thread https://connect.mayoclinic.org/discussion/essential-thrombocythemia-treatment-with-besremi/?pg=10#comment-1660209. I am...

https://connect.mayoclinic.org/comment/1661495/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: 5 days ago

I would be interested in why I have heard that Besremi is not proven to reduce...

https://connect.mayoclinic.org/comment/1661350/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: 5 days ago

@loribmt Hi Lori, my blood cancer specialist at UVA’s Cancer Clinic told me last month that...

https://connect.mayoclinic.org/comment/1641597/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Aug 9 3:01pm

I have been on Besremi for a year and a half. I would tell everyone that...

https://connect.mayoclinic.org/comment/1629816/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Jul 26 10:14am

hi all, today 8/31 FDA just approved Besremi for ET treatment (any ET type). Patients who...

https://connect.mayoclinic.org/comment/1660209/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Aug 31 8:46pm

hi all, today 8/31 FDA just approved Besremi for ET treatment (any ET type). Patients who...

https://connect.mayoclinic.org/comment/1661529/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: 5 days ago

@ednels, there are several Besremi-related discussions that may interest you. Using the group search, see all...

https://connect.mayoclinic.org/comment/1592414/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Jun 7 6:24am

@marykatherine62 any discussion of starting Besremi?

https://connect.mayoclinic.org/comment/1652180/

Discussion: Hesitant on starting Hydrea for ET Jak 2

Support Group: Blood Cancers & Disorders

Posted: Aug 22 5:43am

@pfscheyer I’m sorry to hear about your struggles with Besremi. From everything I have read, we...

https://connect.mayoclinic.org/comment/1654132/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Aug 24 9:36am

I start Besremi today. Cautiously optimistic.

https://connect.mayoclinic.org/comment/1644462/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Aug 13 6:11am

Hi Keith, I moved your message to this existing discussion: - BESREMi anyone? https://connect.mayoclinic.org/discussion/besremi-anyone/ I did...

https://connect.mayoclinic.org/comment/911723/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2023

Haven't heard of besremi as a drug for ET. Hope all goes well with the enzymes.

https://connect.mayoclinic.org/comment/1650641/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Aug 20 8:24am

Thank-you…I believe this is extremely valuable to know for anyone starting Besremi and whose autoimmune system...

https://connect.mayoclinic.org/comment/1643145/

Discussion: Besremi and Dermatitis

Support Group: Blood Cancers & Disorders

Posted: Aug 11 9:52am

Just wanted to share my personal story. I have triple negative ET. After HU (1000mg daily)...

https://connect.mayoclinic.org/comment/1661530/

Discussion: Started Hydroxyurea: How long to see decrease in counts?

Support Group: Blood Cancers & Disorders

Posted: 5 days ago

I’m a 69 year old male, diagnosed with PV 5 months ago, and just started Besremi....

https://connect.mayoclinic.org/comment/1665705/

Discussion: Diagnosed with CMML. On HU for past 6 months. Considering BESRAMi.

Support Group: Blood Cancers & Disorders

Posted: 13 hours ago

@nancyra I have ET with Calr No hair loss and no mood swings for me. Besremi...

https://connect.mayoclinic.org/comment/1643718/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Aug 12 6:24am

@nohrt4me i am curious, what are you doing for nausea? My daughter is experiencing unbelievable nausea,...

https://connect.mayoclinic.org/comment/1658713/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Aug 30 7:45am

I would recommend anyone on hydroxyurea to look into Besremi. It has been shown to significantly...

https://connect.mayoclinic.org/comment/1204661/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2025

Is Besremi available in the US, for Medicare patients? I am on HU and thinning hair....

https://connect.mayoclinic.org/comment/1379828/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2025