Blood Cancers & Disorders: Discussions | Page 9

@debscullum62 Welcome to Mayo Clinic Connect. How did you find us? Here is information about MGUS...

https://connect.mayoclinic.org/comment/913774/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2023

Hi @jeffreymelsontate, There are 6 six types of systemic mastocytosis and treatment can vary, depending on...

https://connect.mayoclinic.org/comment/1287127/

Discussion: Systemic Mastocytosis: Does anyone have bone pain?

Support Group: Blood Cancers & Disorders

Posted: Apr 21 8:53pm

It's so frustrating to not have specific information especially on the Wait and Watch MGUS. I...

https://connect.mayoclinic.org/comment/1317122/

Discussion: Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?

Support Group: Blood Cancers & Disorders

Posted: May 31 9:50am

I read through the comments and it is true, some Hemonocs look at M-Spikes over 1.6...

https://connect.mayoclinic.org/comment/1287826/

Discussion: M-Spike and Lambda light chain increasing while KL ratio decreasing

Support Group: Blood Cancers & Disorders

Posted: Apr 22 9:36pm

@jart When I have had the 24-hour urine test, they are looking for protein levels, so...

https://connect.mayoclinic.org/comment/708543/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: May 15, 2022

@dickmm I’m glad my story was helpful and in reading some of the other comments from...

https://connect.mayoclinic.org/comment/1409490/

Discussion: Anyone have experience with daratumumab (Darzalex) to treat Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Oct 6 9:08am

@dbont Let me add my welcome to Mayo Clinic Connect! Watching and waiting in any situation...

https://connect.mayoclinic.org/comment/810073/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2023

@nick86 Exactly what @pmm said! MGUS is not a death sentence. I did not follow the...

https://connect.mayoclinic.org/comment/939597/

Discussion: Does anyone have any info on MGUS treatment or risk of progression?

Support Group: Blood Cancers & Disorders

Posted: Sep 30, 2023

@ChefT Welcome to Mayo Clinic Connect. I can definitely relate to being scared when you get...

https://connect.mayoclinic.org/comment/839318/

Discussion: Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2023

My Kappa is 238 mg/L and Kappa/Lambda is 20. I was diagnosed with MGUS 8 years...

https://connect.mayoclinic.org/comment/1112060/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2024

@kaurashima Ah, he is leaving. Boy, that seems to be a common theme in health care....

https://connect.mayoclinic.org/comment/1044153/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2024

I agree with Ginger, I was diagnosed with MGUS IN 2022 when trying to discover why...

https://connect.mayoclinic.org/comment/1077974/

Discussion: Bone marrow biopsy and/or blood tests for MGUS

Support Group: Blood Cancers & Disorders

Posted: May 30, 2024

@gmichelle There is no clearcut evidence that it is always linked, but some people do experience...

https://connect.mayoclinic.org/comment/796157/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2023

@ginorio You might want to ask your oncologist the reason for being so aggressive if your...

https://connect.mayoclinic.org/comment/1005243/

Discussion: How to know whether smoldering myeloma or multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2024

I discovered I had MGUS through other testing that was done looking for a root cause...

https://connect.mayoclinic.org/comment/1200159/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2024

I had a sugery on April 26 2023 and 4 days later i had a DVT...

https://connect.mayoclinic.org/comment/1337805/

Discussion: Lower leg blood clot. Occlusion DVT thrombotic

Support Group: Blood Cancers & Disorders

Posted: Jun 29 12:48pm

Having MGUS is difficult disease. It’s usually found by accident. You have no physical symptoms. You...

https://connect.mayoclinic.org/comment/1284519/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 18 8:40am

I’m in Twin Cities MN. Rochester MN Mayo is 2 hours away. I did look up...

https://connect.mayoclinic.org/comment/841048/

Discussion: Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2023

Right now, I'm doing 3 month blood panels. I have to go and have a ct...

https://connect.mayoclinic.org/comment/109625/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2016

Welcome Gina, it does seem odd to watch and wait but as Ginger noted, that’s what...

https://connect.mayoclinic.org/comment/804774/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2023

Blood Cancers & Disorders Support Group