Blood Cancers & Disorders Support Group

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Comments (236)

Hi, we stopped shots at the end of round 3(July) to see if her marrow needed...

https://connect.mayoclinic.org/comment/932514/

Discussion: Side effects of Vidaza injections

Support Group: Blood Cancers & Disorders

Posted: Sep 19, 2023

Welcome to Connect, @vng. It’s wonderful that your husband is doing so well on Vidaza for...

https://connect.mayoclinic.org/comment/1398785/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2025

My mother was diagnosed with MDS about 10 months ago… she is a healthy 88 years...

https://connect.mayoclinic.org/comment/1382483/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Aug 30, 2025

Hi, @tomatoes We're going to go with the plan as it has been laid out for...

https://connect.mayoclinic.org/comment/1387988/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 6, 2025

You’re so right it is Vidaza. He had his follow up with his wonderful doctor at...

https://connect.mayoclinic.org/comment/1272994/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2025

Hello @jaylevel1, welcome to Connect. It is my understanding, and I am not a medical professional,...

https://connect.mayoclinic.org/comment/226228/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2018

Lori, I wanted to update you on my husbands progress of his myelofibrosis. He finished his...

https://connect.mayoclinic.org/comment/1300132/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 8, 2025

I'm 79 male and burdened with 5 mutuated chromosome that manife s ted into MDS/AML having...

https://connect.mayoclinic.org/comment/1183124/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2024

Hi Lori, I'm back with questions...I just got home a little bit ago; my husband was...

https://connect.mayoclinic.org/comment/780961/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2022

@loribmt You are very comforting ! Thank you for being here on line . My husband...

https://connect.mayoclinic.org/comment/1524602/

Discussion: What disorders cause low red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Mar 11 10:59am

Don't be afraid of the diagnosis . Pray instead . Pray for God to guide your...

https://connect.mayoclinic.org/comment/1443945/

Discussion: 79 year old male with MDS: Worried about increasng fatigue

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2025

Hi @njjwjj Welcome to Connect. It’s very encouraging to hear that the Vidaza (Azacitidine) treatment you’re...

https://connect.mayoclinic.org/comment/952899/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2023

Melissa, i am not a doctor, but i can share what I've been doing: 1. sudden...

https://connect.mayoclinic.org/comment/1155566/

Discussion: Venetoclax plus decitabine not working?

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2024

I feel for you, I am in the same situation. My husband was diagnosed with MF...

https://connect.mayoclinic.org/comment/1520690/

Discussion: This is new, overwhelming. Wife is diagnosed with PV, we need support

Support Group: Blood Cancers & Disorders

Posted: Mar 6 6:46am

@mriopka I was hospitalized immediately after diagnosis to undergo 7+3 chemo, then MEC chemo, and finally...

https://connect.mayoclinic.org/comment/946032/

Discussion: Venetoclax plus decitabine not working?

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2023

In May 2023 MDS went to AML with 16% blasts. Blood #s were all over the...

https://connect.mayoclinic.org/comment/1257618/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2025

This gives me hope. I have been diagnosed with CMML border line AML. I have 6...

https://connect.mayoclinic.org/comment/1098689/

Discussion: Acute Myeloid Leukemia (AML) - Treatment of 75 year old is working!

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

Stem cell/bone marrow transplant is very very challenging and not recommended for anyone over 75 (until...

https://connect.mayoclinic.org/comment/1241902/

Discussion: MDS 80 yr old male

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2025

@loribmt Happy weekend, Lori. I just needed to reread your encouraging words after discouraging news on...

https://connect.mayoclinic.org/comment/1418158/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Oct 18, 2025

Welcome to Connect, @tawakol. Acute Myeloid Leukemia (AML) is a type of cancer in the blood...

https://connect.mayoclinic.org/comment/1228262/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2025

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